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Effectronica posted:Orphan drugs are probably the quintessential example. Paroxysmal nocturnal hemoglobinuria, which affects between 7000-14000 people per year, is treated with Soliris, which costs over $400,000 a year to administer, and bone marrow transplants, which are risky. Both are limited in effectiveness, as well. The majority of people with the disease cannot access treatment, and it has a high fatality rate. People die every year because of this. Fair point.
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Apr 4, 2015 15:11
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That kid had a lot of pictures of himself holding a gun. Was it his parent's gun? You can't own a handgun before you're 18, right?
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Apr 4, 2015 16:54
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tumblr.txt posted:If I am ever in the (terrible) situation where multiple people are dying, and I can only save one, you bet I'm going to apply my judgement. please dont' just save the white people tia
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Apr 4, 2015 17:21
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boom boom boom posted:That kid had a lot of pictures of himself holding a gun. Was it his parent's gun? You can't own a handgun before you're 18, right?
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Apr 4, 2015 17:51
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These photos are Chappelle's Show quality.
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Apr 4, 2015 20:21
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Volkerball posted:Seems like one of those situations where activists jumped the gun. You'll see it in basically any decentralized movement against a real injustice that can spark grassroots outcry at any time, and activists for black rights are no exception. Similar to how Michael Brown became the figurehead for abuses by police against black men, despite Brown being custom-tailored for every racist argument to have some weight relative to someone like Kenneth Chamberlain, where there's no argument to be made. It's an important fight, but you have to pick your battles, and Stokes was a bad cross to die on. It's probably going to come back to bite the overall cause now. There will ALWAYS be an argument to be made no matter what. If Ken Chamberlain had gotten as much press as Mike Brown did, there'd be just as many racists yelling about how it was a good shoot because he was being violent and threatening.
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Apr 4, 2015 20:42
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Besides, this kid got more QALY out of his heart than Steve Jobs did out of his bought-and-paid-for pancreas and probably was also more med-complient.
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Apr 4, 2015 20:44
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BigBoss posted:These photos are Chappelle's Show quality. Seriously. Arguments about the appropriateness of giving this kid a heart aside that's a pretty funny burn on the part of the news anchor that responded. Shame the kid couldn't turn his life around though. Fifteen is early enough that nothing's really set in stone. Archonex fucked around with this message at 21:00 on Apr 4, 2015 |
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Apr 4, 2015 20:57
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Lyesh posted:There will ALWAYS be an argument to be made no matter what. If Ken Chamberlain had gotten as much press as Mike Brown did, there'd be just as many racists yelling about how it was a good shoot because he was being violent and threatening. Yes, but when you see that argument about Chamberlain, who had a bullet pass through his arm into his body, showing his arms were at his sides, and audio of police calling him a friend of the family, a lot more people would be like "uhhhhh"
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Apr 4, 2015 21:35
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D&D is left wing
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Apr 4, 2015 21:50
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When you really think about it, should deliquent thug youth get to keep their hearts?
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Apr 4, 2015 22:11
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Apr 4, 2015 22:18
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SedanChair posted:When you really think about it, should deliquent thug youth get to keep their hearts? Win/win.
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Apr 4, 2015 22:25
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I'm enjoying how the D&D radicals are unironically complaining about trained medical experts for implementing federally mandated, racially- and fiscally-blind queue systems, which they are effectively labeling death panels. Instead they seem to be supporting religious organizations using their political weight to instill favoritism. You know, because that's so progressive rather than just being politically expedient for this one kid. 
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Apr 4, 2015 22:49
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Kaal posted:I'm enjoying how the D&D radicals are unironically complaining about trained medical experts for implementing federally mandated, racially- and fiscally-blind queue systems, which they are effectively labeling death panels. Instead they seem to be supporting religious organizations using their political weight to instill favoritism. You know, because that's so progressive rather than just being politically expedient for this one kid. I'm enjoying how the D&D reactionaries are trying every argument under the sun as to why it's a moral harm to give organ transplants to black teens when there are so many deserving white people.
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Apr 5, 2015 00:10
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Popular Thug Drink posted:I'm enjoying how the D&D reactionaries are trying every argument under the sun as to why it's a moral harm to give organ transplants to black teens when there are so many deserving white people. Maybe race isn't a consideration for everyone here.
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Apr 5, 2015 00:37
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Rent-A-Cop posted:The criminal justice system is basically already an incredibly long and expensive death sentence for black youth so when you think about it just taking their healthy organs after the first felony would be a mercy for them and save some sick person less likely to be viciously persecuted by the state. That's an incredibly hosed up thing to say.
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Apr 5, 2015 00:57
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TheImmigrant posted:Maybe race isn't a consideration for everyone here. No he's just an idiot living in a constructed world. It's already been made pretty clear that if Stokes hadn't gotten the heart transplant it would have gone to another person in the Atlanta area, which statistically would have been another young black person - only one without a religious organization to use their political weight to push them to the top of the transplant list. There's already a good national system for organizing transplantation candidates that is overseen by dedicated professionals. Liberals should be supporting it as a classic example of American technocratic progressivism, rather than joining the conservatives in making up stories about death panels and encouraging nepotism. Kaal fucked around with this message at 01:16 on Apr 5, 2015 |
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Apr 5, 2015 01:06
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Rent-A-Cop posted:The criminal justice system is basically already an incredibly long and expensive death sentence for black youth so when you think about it just taking their healthy organs after the first felony would be a mercy for them and save some sick person less likely to be viciously persecuted by the state. you must be fun at parties
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Apr 5, 2015 01:09
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If only we could go back in time and eliminate all mentions of race from the initial articles about the transplant denial and the articles about his death and then see if we get any responses more polarizing than "it's a difficult and tragic situation all around."
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Apr 5, 2015 01:10
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Alastor_the_Stylish posted:If only we could go back in time and eliminate all mentions of race from the initial articles about the transplant denial and the articles about his death and then see if we get any responses more polarizing than "it's a difficult and tragic situation all around." I think that the key thing to consider is that if Stokes had been a troubled white kid using his church connections to get pushed to the top of the heart transplantation list, ahead of a bunch of black kids, then people would have not been nearly as willing to join his bandwagon. But when a black kid does the exact same thing, vaulting over the heads of a bunch of black kids, suddenly it became about getting a run in for the home team regardless of the cost. So clearly race played a pretty significant element in how the story played out in the media. I don't mind a little political theatre, but it's a pity that the system got undermined, a heart got wasted, and some innocent kid had to die for it. Kaal fucked around with this message at 01:28 on Apr 5, 2015 |
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Apr 5, 2015 01:22
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 Do the transplant and ignore all the facts or we'll label you a racist. You don't want to be called a bigot do you? You're racist aren't you. Wait until Twitter hears about this.
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Apr 5, 2015 01:27
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Kaal posted:I'm enjoying how the D&D radicals are unironically complaining about trained medical experts for implementing federally mandated, racially- and fiscally-blind queue systems, which they are effectively labeling death panels. Instead they seem to be supporting religious organizations using their political weight to instill favoritism. You know, because that's so progressive rather than just being politically expedient for this one kid. Well, the public pressure brought to light the fact that the primary medical reason for the decision (his record of compliance with doctors' orders) was incorrect. Is your problem here with public oversight and criticism of technocratic institutions? You seem to be attributing that position to the political left, incorrectly.
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Apr 5, 2015 01:34
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Kaal posted:I think that the key thing to consider is that if Stokes had been a troubled white kid using his church connections to get pushed to the top of the heart transplantation list, ahead of a bunch of black kids, then people would have not been nearly as willing to join his bandwagon. So you're admitting you're just making things up now.
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Apr 5, 2015 01:37
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Hodgepodge posted:Well, the public pressure brought to light the fact that the primary medical reason for the decision (his record of compliance with doctors' orders) was incorrect. [Citation Needed] And good luck because all that information is tied up under the HIPAA Act until 50 years after his death. Parents complaining to their church leaders who then lean on doctors to make medical decisions is not the kind of "public oversight" that this country needs. Theocratic favoritism is not a progressive ideal, even when the immediate outcome means a troubled black kid gets what he needs. Kaal fucked around with this message at 01:47 on Apr 5, 2015 |
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Apr 5, 2015 01:40
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Man, he really had a thing for selfies with guns and stupid hats.
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Apr 5, 2015 01:46
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Kaal posted:[Citation Needed] And good luck because all that information is tied up under the HIPAA Act until 50 years after his death. Several reasons have been given for the decision; only one medical. Although some digging reveals that the decision was made on the basis of non-compliance with the legal system, not with doctors' orders. So the doctor made a call based not on medical facts, but on his personal assessment of the social worth of this patients' life. That should not be something anyone is comfortable with a doctor making, especially someone with progressive ideals. Many public organizations are religious, and within the black community many of the most prominent and accessible sources of advocacy are religious. Are you saying that an institution should be automatically disqualified from public discourse because it is religious?
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Apr 5, 2015 01:50
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Strudel Man posted:Man, he really had a thing for selfies with guns and stupid hats. Hey that's just bigotry, he had selfies without stupid hats: 
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Apr 5, 2015 01:54
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Transplants should not be open to public discourse. The first decision was the right decision. Something as expensive and in such short supply should have factors like criminal history and societal worth take into it. The fact that this surgery happened and a heart was wasted should be more than enough to convince you that outside sources should not have impact on these kind of decisions. Now spout some stupid SJW bullshit at me.
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Apr 5, 2015 01:55
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Hodgepodge posted:Several reasons have been given for the decision; only one medical. Although some digging reveals that the decision was made on the basis of non-compliance with the legal system, not with doctors' orders. So the doctor made a call based not on medical facts, but on his personal assessment of the social worth of this patients' life. That should not be something anyone is comfortable with a doctor making, especially someone with progressive ideals. Again, [Citation Needed]. Unless you're just quoting the parents, who made that accusation to attract the media but never substantiated it in any way. quote:Many public organizations are religious, and within the black community many of the most prominent and accessible sources of advocacy are religious. Are you saying that an institution should be automatically disqualified from public discourse because it is religious? Are you seriously suggesting that religious organizations should be getting involved in medical policy? Should people start getting wealthy patrons to ensure they have access to medical care? Exactly how far back do you want to turn the clock on progressive ideals in your quest to defend this kid?
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Apr 5, 2015 01:59
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Amos Moses posted:Transplants should not be open to public discourse. The first decision was the right decision. Okay. So how do you define societal worth? Because you're opening a whole can of worms there. You want to see a shitstorm? Try the sort of bullshit justifications you'd get when trying to decide whether someone is worth more than someone else because of the cash they pull in or job they hold. And that's assuming some sort of mythical society where you don't get bias thrown into the picture in some way. I mean, gently caress, a good chunk of the country can't seem to agree with the rest of the country that gay people deserve equal rights. Do you really think that would go over that well in a society like ours? There's a reason why these panels aren't supposed to take some sort of theoretical worth into account. You're just asking for trouble and a host of tragedies. Archonex fucked around with this message at 02:09 on Apr 5, 2015 |
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Apr 5, 2015 01:59
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Kaal posted:Hey that's just bigotry, he had selfies without stupid hats: Wow those photos really frighten you huh?
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Apr 5, 2015 02:01
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Kaal posted:I think that the key thing to consider is that if Stokes had been a troubled white kid using his church connections to get pushed to the top of the heart transplantation list, ahead of a bunch of black kids, then people would have not been nearly as willing to join his bandwagon. But when a black kid does the exact same thing, vaulting over the heads of a bunch of black kids, suddenly it became about getting a run in for the home team regardless of the cost. So clearly race played a pretty significant element in how the story played out in the media. I don't mind a little political theatre, but it's a pity that the system got undermined, a heart got wasted, and some innocent kid had to die for it. Shucks, those team-minded blacks. If only they would stop just looking out for the home team, and not "see" race. e: It is genuinely hilarious how people want to go back in time and take this kid's heart away because he committed a crime. And how the exact same crowd is posting the exact same pictures that they would if he had been shot by the police. Let's start an Otis Byrd thread so we can post menacing pictures of him as well. woke wedding drone fucked around with this message at 02:07 on Apr 5, 2015 |
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Apr 5, 2015 02:05
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VitalSigns posted:Wow those photos really frighten you huh? He was good kid, gettin his life back together, going back to school. Trying to shoot grandma, that was just a mistake, hes a good kid, he goes to church! Hodgepodge posted:Several reasons have been given for the decision; only one medical. Although some digging reveals that the decision was made on the basis of non-compliance with the legal system, not with doctors' orders. So the doctor made a call based not on medical facts, but on his personal assessment of the social worth of this patients' life. That should not be something anyone is comfortable with a doctor making, especially someone with progressive ideals. Who should make it if not a doctor (I think it was some kind of medical board in this case)? They're the ones charged with responsibility here, and someone has to make the call. And in this case overriding the doctor's decision meant this piece of garbage took a heart that should have gone to someone worthwhile.
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Apr 5, 2015 02:05
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VitalSigns posted:Wow those photos really frighten you huh? Someone posing with a mouth full of cash and pointing a gun in a manner meant to threaten? Glamorizing the criminal lifestyle? Those pictures frighten me sure. One of those gangbanger pieces of poo poo could shoot someone I care about. I'm sure he was a good boy though. Make a loving hashtag about it.
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Apr 5, 2015 02:05
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Archonex posted:Okay. So how do you define societal worth? *meaningfully glances at paper bag* Amos Moses posted:Someone posing with a mouth full of cash and pointing a gun in a manner meant to threaten? Glamorizing the criminal lifestyle? So are you always this much of a coward, or just when you're whining on the internet?
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Apr 5, 2015 02:06
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VitalSigns posted:Wow those photos really frighten you huh? Lol you are so out of touch with the 21st century. These photos are just some idiot kid trying to impress his buddies. But it's hilarious that he apparently didn't take any other kind of photo.
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Apr 5, 2015 02:06
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"I'm scared of black people, and I blame SJWs for this" -A Literal Retard
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Apr 5, 2015 02:07
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Popular Thug Drink posted:*meaningfully glances at paper bag* Keep on keepin' on SJWs.
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Apr 5, 2015 02:08
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Amos Moses posted:Those pictures frighten me sure. One of those gangbanger pieces of poo poo could shoot someone I care about. Do you have any evidence that this kid was in a gang? Why would his crime spree prompt you to conclude he was in a gang?
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Apr 5, 2015 02:10
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