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i am autism
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Jun 8, 2019 12:01
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Quickly! Inoculate some children!
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Jun 8, 2019 12:13
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I did an autism once. Don’t see what the big deal is. Didn’t even like it. Loud noises, bright lights and the laughter of children caused me physical and mental anguish for about a month. It was miserable. I don’t recommend hypersensitivity. E: I just remembered that during the same period, being physically touched caused me to reflexively flinch and panic briefly. I think it was some weird brain med interaction or something. Pvt.Scott has a new favorite as of 16:38 on Jun 8, 2019 |
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Jun 8, 2019 16:34
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As an autism-spectrum adult with ADHD who works with kids with similar diagnoses, I can confirm - autistic outbursts are predictable responses to social stressors that neurotypical people often also hate dealing with, but are socialized and empowered to repress their responses to. Yes, sometimes those reactions can seem arbitrary or irritating or scary but we aren't dumb animals or giant infants, we're people that society - capitalism and one-size-fits-all institutions - systematically underserve and abuse.
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Jun 8, 2019 18:26
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DoctorWhat posted:As an autism-spectrum adult with ADHD who works with kids with similar diagnoses, I can confirm - autistic outbursts are predictable responses to social stressors that neurotypical people often also hate dealing with, but are socialized and empowered to repress their responses to. Yes, sometimes those reactions can seem arbitrary or irritating or scary but we aren't dumb animals or giant infants, we're people that society - capitalism and one-size-fits-all institutions - systematically underserve and abuse. Anyway that's why functioning labels can be problematic, not because there's no difference in someone who can hold a steady job and relationships and seem just a little 'quirky' vs someone who goes nonverbal and struggles to communicate how they're feeling, but because people can assume 'high-functioning' means 'doesn't need any assistance, what are you complaining about' and 'low-functioning' to mean 'stupid, animalistic, not a person', when of course the reality is both people are people who have good and bad days.
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Jun 8, 2019 18:41
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isn't it the case that when 'low-functioning' gets 'low-' enough it's basically mental retardation though? it seems a bit rosy to treat autism like everyone will be perfectly fine if we just give them some sun shades and earplugs
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Jun 8, 2019 18:45
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People with severe developmental disabilities are still people with needs, sensitivities, and dignity. Yes, there are people for whom no degree of understanding or accomodation will get them to a GED - but those accomodations and adjusted expectations will still dramatically improve their quality of life, whereas desperately seeking "cures" burns away resources that could be used to support autistic people right now, while perpetuating stigma against autism and autistic behavior that reduces quality-of-life for everyone on the spectrum.
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Jun 8, 2019 18:56
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Looks like the real unnerving is the autism we made along the way
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Jun 8, 2019 20:30
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theflyingorc posted:It's kinda weird to say "not a disease", because my ADD sure feels like one and it's also definitely a huge part of who i am as a person Same here. It's absolutely a loving disease and I hate it.
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Jun 8, 2019 20:51
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The Mighty Moltres posted:https://metro.co.uk/2019/06/07/gay-...iY2YIFu_YysrO44 
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Jun 8, 2019 21:15
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I have no direct experience with autism, but there’s a woman on my neighborhood Facebook group who has a severely autistic adult son (my apologies if that’s not the correct way to identify this). Just from a few of her posts, it’s clear her entire life has to be devoted to him. It obviously cost her her marriage, and her profile picture is of someone who has forgotten what it’s like to be happy. I mean it’s heart wrenching to see the photo she uses to represent herself. She’s a total stranger, but I feel sorrier for her than anyone I know. Edit: to be clearer, I’m sorry that she doesn’t have the support she needs. I’m in no way intending to take a jab at autism. Uppa has a new favorite as of 21:34 on Jun 8, 2019 |
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Jun 8, 2019 21:30
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Killingyouguy! posted:isn't it the case that when 'low-functioning' gets 'low-' enough it's basically mental retardation though? it seems a bit rosy to treat autism like everyone will be perfectly fine if we just give them some sun shades and earplugs Read my second paragraph, please.
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Jun 8, 2019 22:03
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Uppa posted:I have no direct experience with autism, but there’s a woman on my neighborhood Facebook group who has a severely autistic adult son (my apologies if that’s not the correct way to identify this). Just from a few of her posts, it’s clear her entire life has to be devoted to him. It obviously cost her her marriage, and her profile picture is of someone who has forgotten what it’s like to be happy. I mean it’s heart wrenching to see the photo she uses to represent herself.
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Jun 8, 2019 22:05
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PetraCore posted:Yeah it's hosed up that people are supposed to burn themselves out as caretakers instead of there being more robust governmental disability support. My son is only 4 but is on the severe end of the spectrum and I love that little boy to death but there are some days where he just drives me absolutely insane with the things he does. Thankfully between me and his mother we can give each other a break every now and again when things get too overwhelming. Neither one of our families are any help because they are all afraid of our son because he isn't "normal". He is gonna have to live with us probably for the rest of his life and it's really scary to think about what's gonna happen we he gets big enough and has a meltdown and might be able to actually hurt me or his mother.
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Jun 9, 2019 00:58
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Hoffadoff posted:I love that little boy it's really scary to think about what's gonna happen we he gets big enough and has a meltdown and might be able to actually hurt me or his mother. I worked in a psychiatric hospital with patients with severe developmental disabilities, and from my experience having a strong care plan is crucial. For us, knowing triggers was incredibly important (never say "no" and appeal to authority "let me ask [his nurse's name]), and avoiding being alone with said patient. He was in a Forsenic Psychiatric Ward when i worked him for obvious reasons, as below. https://www.cbc.ca/news/canada/edmonton/female-careworker-killed-by-client-shouldn-t-have-been-left-alone-judge-says-again-1.3961599 I'm pretty drat tall myself, but he was twice my weight and had a good 6 inches on me and a history of assaulting female staff and loving terrified me.
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Jun 9, 2019 04:46
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One of the unnerving parts for me is what happens when an autistic kid becomes an adult and how easily things can turn violent. Its a sensitive subject and i mean no offense and I know that its not applicable to many other autistic persons, but reading this article written by the mother of an aggressive now large adult who has to deal with an uneasy future regarding safety but also the love for her child makes me so sad for all those involved. As its been said before, mental health support and services direly needs to expand for the sake of everyone. I'm not a praying person, but I do hope for the best for families in these special kinds of situations "The monster inside my son" https://www.salon.com/2009/03/26/bauer_autism/ " Our adult son's behavior could be the outcome of living daily in a world where everything hurts and nothing makes sense. It could be the result (as some scientists have postulated) of excess testosterone on the autistic brain. It could simply be wild coincidence that I ran across this particular story during a time when I was looking for answers. Any of these is possible. I just don't know. The chairman of Trudy Steuernagel's department rose at her memorial service to proclaim, "Autism doesn't equal violence." And this probably is mathematically correct: Autism does not always equal violence. But I do believe there may be a tragic, blameless relationship. Neither Sky nor Andrew means to be murderous -- of this I am sure -- but their circumstances, neurology, size and age combine to create the perfect storm." cinni has a new favorite as of 07:42 on Jun 9, 2019 |
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Jun 9, 2019 07:38
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I work with autistic children in a school and even very understanding teachers struggle to truly appreciate the difficulties that asc children face everyday. We do an exercise where you talk them through the child's life from them waking up to the start of school just to try and highlight how different their experiences are. It's all very dumbed down but you end up with stuff like this: You wake up after four hours sleep which is the most you ever get because your brain doesn't produce enough sleep chemical. You don't know if it's a school day or a weekend, this causes anxiety. That anxiety turns to adrenaline. Your brain does not produce enough of the chemical to slow down and reverse adrenaline, so you are now in a fight or flight response with no way of solving it. You are made to eat breakfast. You have digestive issues that flare up immediately. You are now in fight or flight and your stomach is cramping. You are made to wear your school uniform. Your sensory issues make it feel like sandpaper. Your collar is touching your whole neck all the time. Your stomach is bloating because of digestive issues so now the trousers that should fit are digging in and rubbing at your waist. You go to school - this could actually allow an opportunity to calm a little, or it could be an ordeal. You arrive at school, peak adrenaline, 4 hours sleep, sandpaper clothes, stomach cramps. Your parent says goodbye and then leaves. Even as old as a teenager, you have issues with object permanance. As your parent leaves, you don't know if you will ever see them again or where they have gone. This isn't an extreme case - this is one of our higher functioning autistic children.
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Jun 9, 2019 08:02
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Uppa posted:I’m in no way intending to take a jab at autism. Content: neither are anti-vaxxers.
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Jun 9, 2019 09:18
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Jedit posted:Content: neither are anti-vaxxers. Grooooaaaaannnn
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Jun 9, 2019 11:35
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Are there clothes or foods that you can give to an autistic guy like in that post that would improve the situation at least in that respect? Collarless for starters?
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Jun 9, 2019 13:44
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E: Wrong thread.
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Jun 9, 2019 13:53
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aphid_licker posted:Are there clothes or foods that you can give to an autistic guy like in that post that would improve the situation at least in that respect? Collarless for starters? Definitely. But everyone is going to be different so it's not a one size fits all sorta deal. A close friend of mine has autism. When she was little, the doctors told her parents she was unlikely to ever talk, because they thought it was that severe of a disability. Her parents poured a ton of effort into her, worked with a specialist for a care and education plan and were very, very involved. She's gone to post secondary now, writes poetry and is a vegan hippy. So they were mostly successful.
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Jun 9, 2019 14:00
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aphid_licker posted:Are there clothes or foods that you can give to an autistic guy like in that post that would improve the situation at least in that respect? Collarless for starters? Yes, there are tons of ways you can improve an autistic person's quality of life if you listen and pay attention instead of writing them off as animalistic, pitiable freaks. Specific medications like sleep aids. Letting them choose clothes that aren't excruciating to wear. Finding healthy diets that don't cause intestinal distress. But all of that requires time and resources that are not available to a lot of parents and caregivers. And even when those resources are available, so much of our culture refuses to even engage with the idea that our societal demands - school uniforms and "toughen up" attitudes - might be the problem.
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Jun 9, 2019 17:06
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Isn’t this what a disappointments room was for? Those rooms are pretty unnerving.
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Jun 9, 2019 19:00
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Pvt.Scott posted:Isn’t this what a disappointments room was for? Those rooms are pretty unnerving. Those were for any reason that might be seen as shameful to the family whether it was mental issue, physical disability, or even born out of wedlock.
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Jun 9, 2019 20:20
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Brainbread posted:writes poetry and is a vegan hippy. So they were mostly successful. Mostly is a stretch. Jokes aside, that poo poo is amazing how people can take such drastically different routes depending on their care structure. Glad your friend is a happier story than most.
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Jun 9, 2019 22:47
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There was a Dutch teenager named Noa Pothoven who essentially starved herself to death after years of PTSD and depression following multiple sexual assaults. Initially, it was reported internationally as “Dutch government approves killing of teenage girl,” citing the legal euthanasia procedures, but hours later it was corrected — she had applied to the End of Life Clinic but her initial request was rejected due to a lack of parental permission. She didn’t have a doctor present to administer euthanasia. She had been anorexic for years and decided to finally stop eating and drinking altogether, and neither her family nor her doctor stood in the way of her desire. Now there’s a controversy swirling about whether this is what the legalized euthanasia was supposed to include; whether it matters that she was young; whether it matters that it was terminal mental illness (she had tried to commit suicide several times) rather than cancer or some tangible terminal illness; whether suicidality should be treated as terminal; whether it would have been more humane to administer drugs; whether her family are monsters for “letting it happen”... Just a maelstrom of opinions on the limitations of a right to die. As someone with chronic intractable pain and mental illness, the conversation surrounding Pothoven’s death is fascinating in how people can swear they have the best interests or greater good in mind yet still assume their view on the worth of someone else’s life should outweigh that person’s wishes. Misinformation swirling around Dutch teenager's death ignites debate over euthanasia Dutch Teenager’s Death Sets Off Debate, and Media Corrections This teen’s death wasn’t euthanasia — but it was still deeply wrong
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Jun 10, 2019 01:10
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Bummer that her extreme youth is going to muddy the pro euthanasia argument 😔
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Jun 10, 2019 01:24
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except it's not euthanasia at all. She committed suicide in an unusual way.
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Jun 10, 2019 01:48
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Sounds like someone who didn't get proper help following a traumatic event and committed suicide. Not really an argument in favor of euthanasia, unless you extend it to handing out hand guns to the chronically depressed.
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Jun 10, 2019 02:35
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I don't really see why it's anyone's place to tell someone else that they have to remain alive against their will. The right to die seems pretty fundamental to me.
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Jun 10, 2019 03:21
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DragQueenofAngmar posted:I don't really see why it's anyone's place to tell someone else that they have to remain alive against their will. The right to die seems pretty fundamental to me. Many people who plan to or do actually attempt suicide do not do so again after getting help. If I had access to a firearm or some doctor with a needle full of death, I’d probably be dead right now. I don’t want to be dead now that I am no longer suicidal.
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Jun 10, 2019 03:29
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DragQueenofAngmar posted:I don't really see why it's anyone's place to tell someone else that they have to remain alive against their will. The right to die seems pretty fundamental to me. You have a right to die at any time, but you don't have a right to have help doing it except for very specific circumstances in which you couldn't do it yourself.  Pvt.Scott posted:Many people who plan to or do actually attempt suicide do not do so again after getting help. If I had access to a firearm or some doctor with a needle full of death, I’d probably be dead right now. I don’t want to be dead now that I am no longer suicidal. Also, this for sure. CJacobs has a new favorite as of 03:33 on Jun 10, 2019 |
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Jun 10, 2019 03:30
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Pvt.Scott posted:Many people who plan to or do actually attempt suicide do not do so again after getting help. If I had access to a firearm or some doctor with a needle full of death, I’d probably be dead right now. I don’t want to be dead now that I am no longer suicidal. 
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Jun 10, 2019 04:12
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I believe I heard of a case where euthanasia of a severely depressed woman was approved, but that was because she'd tried all currently available treatments and nothing had improved her suicidal desires or lack of enjoyment of living. I'm not sure if that's accurate, googling it has shown me other cases and idk the case histories of the people involved. But while I think accepting a euthanasia request from someone in an altered state of mind (including severe mental illness) is problematic, I can understand the logic if all other treatment options have been exhausted. People don't like to talk about it, but sometimes people are really resistant to treatment. I don't mean they don't want to be treated, I mean the psychiatric drugs intended to correct imbalances aren't working on them. Fortunately, as we understand more about the brain more treatment options are available, so there's still hope, but when you're already severely depressed and not enjoying anything at all, ever, I can understand how being told to wait and hope something will change seems absurd. EDIT: The unnerving thing is while I was trying to find the person I was talking to I hit articles about the number of euthanasias for the mentally ill rising dramatically in the Netherlands, which is... a worrying trend. PetraCore has a new favorite as of 04:24 on Jun 10, 2019 |
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Jun 10, 2019 04:21
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Terrible Opinions posted:Sounds like someone who didn't get proper help following a traumatic event and committed suicide. Not really an argument in favor of euthanasia, unless you extend it to handing out hand guns to the chronically depressed. Unless I've had lovely luck finding any articles mentioning it, but so far I've found nothing to say she'd been getting any therapy help. Closest thing I found was an article mentioning her first attempt to get approval was denied for her age and that she had to've been in some sort of therapy for the particular traumas first.
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Jun 10, 2019 04:23
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PetraCore posted:I'm not sure if that's accurate, googling it has shown me other cases and idk the case histories of the people involved. But while I think accepting a euthanasia request from someone in an altered state of mind (including severe mental illness) is problematic, I can understand the logic if all other treatment options have been exhausted. I hear you on this. I have crohn's disease and I've been resistant to essentially all of the major drugs, to the point where I was put on methotrexate and chemotherapy to suppress my immune system so much that I could barely even keep plain toast down. And we still only barely clinched getting me into remission. Since being diagnosed there have been times when I've genuinely wanted an out, and this is with already knowing firsthand what suicidal ideation is like, and I'm very glad public euthanasia isn't a thing and hopefully never will be because I might not've been able to resist with that kind of pain going on. And I know I would be far, far from alone. edit: And I'm not even speaking of Futurama-style suicide booths. If I directly told my doctor that I didn't want to be alive anymore, what he'd have said (and what he should always say unless he is the only one who possibly could do it for me) is "how can we help you get back to that point?" CJacobs has a new favorite as of 04:32 on Jun 10, 2019 |
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Jun 10, 2019 04:27
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“We shouldn’t allow euthanasaia, because I might have done it,” is a bad take. At best, it’s an argument for putting up safeguards so people can’t make suicide booth impulse buys. At worst, it’s you saying, “My personal experience dictates what the entire rest of the population should be allowed to do.” If an adult human being of otherwise sound mind is living in misery, and we have no treatments that are helping to alleviate it, that person should be allowed to die if that’s what she wants. She should be allowed to die, and she shouldn’t have to do it alone and in secret with recipes she got from Googling death cocktails.
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Jun 10, 2019 05:06
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Again, you are allowed to die whenever you want. But nobody is obligated to help you do it. Medically administered euthanasia for people in unrecoverable situations is how it already works right now. edit: Also, "it shouldn't be allowed because I might have done it" is a really disingenuous way to read my post dude CJacobs has a new favorite as of 05:12 on Jun 10, 2019 |
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Jun 10, 2019 05:09
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CJacobs posted:Again, you are allowed to die whenever you want. But nobody is obligated to help you do it. You’re ignoring all the reasons (several of which I mentioned) why euthanasia really shouldn’t be a DIY project. Also, you literally said you’re glad “public euthanasia” is not a thing, and you hope it never will be. You didn’t say it should’t be an obligation, you said it shouldn’t even be an option. You don’t get to keep saying, “no one is obligated to help you,” when the stance you’re actually taking is, “no one should be allowed to help you.” Edit: I see you edited your post. It’s not disingenuous. It’s exactly what you said. You said people shouldn’t have access to euthanasia, and used your personal experience as the reason why.
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Jun 10, 2019 05:18
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