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SSJ_naruto_2003
Oct 12, 2012



Culex posted:

Thank you!

I guess scoring 151 is a little ... telling. :sweatdrop:

Yeah I scored a 203, my nt wife 63 and my dad 50

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Cloacamazing!
Apr 18, 2018

Too cute to be evil
I was kind of shocked how high I scored too. Of course there will always be some bias in self-reporting, and I think all of us went at that test with the expectation of getting a high score, but that's high numbers.

Did anybody else think that some of the questions were a bit too specific?

65. It calms me to spin around or to rock in a chair when I'm feeling stressed.
66. The phrase, 'He wears his heart on his sleeve,' does not make sense to me.
70. I keep my thoughts stacked in my memory like they are on filing cards, and I pick out the ones I need by looking through the stack and finding the right one (or another unique way).

I feel like a lot of the questions could have been phrased better.

organburner
Apr 10, 2011

This avatar helped buy Lowtax a new skeleton.

I got 153!

Cloacamazing! posted:

I was kind of shocked how high I scored too. Of course there will always be some bias in self-reporting, and I think all of us went at that test with the expectation of getting a high score, but that's high numbers.

Did anybody else think that some of the questions were a bit too specific?

65. It calms me to spin around or to rock in a chair when I'm feeling stressed.
66. The phrase, 'He wears his heart on his sleeve,' does not make sense to me.
70. I keep my thoughts stacked in my memory like they are on filing cards, and I pick out the ones I need by looking through the stack and finding the right one (or another unique way).

I feel like a lot of the questions could have been phrased better.

Yeah those were strangely specific but I don't know maybe those specific things are common?

Organza Quiz
Nov 7, 2009


The real diagnostic test is whether you get annoyed at the questions being badly worded/too open to interpretation!

broken pixel
Dec 16, 2011



Organza Quiz posted:

The real diagnostic test is whether you get annoyed at the questions being badly worded/too open to interpretation!

:ohdear:

I scored pretty drat high but have also been wondering if I "did it right" or "exaggerated."

Bobby Deluxe
May 9, 2004

66 particularly, like as in it makes sense to me but only because I realise that allistic people say poo poo that doesn't make sense all the time, it's just a turn of phrase. And then I get mad at how 'makes sense' is a phrase with an associated meaning rather than a literal one and then I've sort of answered my own question.

Organza Quiz
Nov 7, 2009


One of the things that really made everything fall into place for me was a twitter thread pointing out that constantly noticing puns and double meanings was an autism thing, it's the same brainthing as taking everything too literally except you aren't literally taking it too literally, your brain is just catching on the other meanings even if you do know intellectually which one is the one that they meant in the situation.

for fucks sake
Jan 23, 2016

broken pixel posted:

:ohdear:

I scored pretty drat high but have also been wondering if I "did it right" or "exaggerated."

There's a little disclaimer on the site that says

quote:

The test has good reliability when self-administered, but this can drop down to 30% when clinicians administer it, depending on their understanding of autism
Which makes it seem like self-administration is preferred. I got 143 btw which was both higher than I expected and also totally in-line with every other self-diagnosis test I've taken online.

Organza Quiz posted:

One of the things that really made everything fall into place for me was a twitter thread pointing out that constantly noticing puns and double meanings was an autism thing, it's the same brainthing as taking everything too literally except you aren't literally taking it too literally, your brain is just catching on the other meanings even if you do know intellectually which one is the one that they meant in the situation.

Maybe this is why one of my all-time favourite english phrases is "Time flies like an arrow, fruit flies like a banana". Do you have a link to the thread?

organburner
Apr 10, 2011

This avatar helped buy Lowtax a new skeleton.

Organza Quiz posted:

One of the things that really made everything fall into place for me was a twitter thread pointing out that constantly noticing puns and double meanings was an autism thing, it's the same brainthing as taking everything too literally except you aren't literally taking it too literally, your brain is just catching on the other meanings even if you do know intellectually which one is the one that they meant in the situation.

Does that mean all dads are autistic?

Cynicus
May 1, 2008


owling furies.

mine most definitely is!

SetsunaMeioh
Sep 28, 2007
Mistress of the Night
I consistently scored in the 180s whenever I took that test (which I did several times as a way to ensure I wasn't lying to myself.)

But yeah, some of the wording of those questions feel too strict as someone tends to read things very literally.

whydirt
Apr 18, 2001


Gaz Posting Brigade :c00lbert:
Your score is meaningless. Literally the only criteria for autism is questioning the questions. :science:

TIP
Mar 21, 2006

Your move, creep.



for fucks sake posted:

There's a little disclaimer on the site that says

quote:

The test has good reliability when self-administered, but this can drop down to 30% when clinicians administer it, depending on their understanding of autism

Which makes it seem like self-administration is preferred.

That is hilarious but also kinda disheartening that doctors are THAT bad with autism.

When I took the test I definitely felt frustrated by the wording on many questions and I felt like I was probably gonna show up as normal. My score was 135. :v:

Mu Zeta
Oct 17, 2002

Me crush ass to dust

I scored 132. I started suspecting within the last 4-5 years that I might be on the spectrum especially after learning that it is a spectrum and not just rain man. I guess I should make an appointment for an official diagnosis at some point, but I think I've done a decent job hiding it my whole life since not one person has ever suggested I was autistic or had any kind of mental issues except that I was shy.

Thinking about it now I do remember some things that people pointed out to me throughout my life.


- I've made a couple people cry in high school because I apprently made some rude or blunt statement and I honestly couldn't remember saying anything mean.

-Friends have also told me a few times that I will hang up the phone in the middle of a conversation without saying good bye. I guess I'd say something like "all right" and hang up thinking it was over.

-When I was in grade school, maybe in 2nd-4th grade, I remember being told constantly that I was being disruptive and loud. My parents were called in to meet the teachers several times to discuss this. One time I was taken out of class and some new teacher or counselor or something would show me a bunch of pictures and asked me what I saw. I distinctly remember one picture was obviously Mexican people celebrating something so I said it was maybe people celebrating Cinco de Mayo. I was like 8 so I didn't know what cinco de mayo even was, it was just the only Mexican holiday I could think of. She said it was actually Mexican celebrating the Day of the Dead. I don't remember doing any kind of testing like that again.

- also I do maintain eye contact but admit that it's exhausting.

Quorum
Sep 24, 2014

REMIND ME AGAIN HOW THE LITTLE HORSE-SHAPED ONES MOVE?
When I had my formal assessment, the psychologist I was working with noted in advance that the testing instruments might be a little clunky, and asked me to note any confusion I had, so I definitely monologued hesitantly about weird question wording more than once (presumably incrementing a counter just off camera :v:). I also noted a bunch of really lovely assumptions in a few of them, like one that asked about relationships with "the opposite sex," which didn't make a lot of sense for A Gay like myself. Thankfully she seemed glad to get the feedback, and hopefully as more adults are seeking diagnoses and support we'll see improvements in the assessment tools as well.

Tjadeth
Sep 16, 2012

:minnie: Cat Army :minnie:
2nd Battalion
VOLUNTEER
:nyan:
This list is so hazardous to pedants that I'm genuinely starting to wonder if it was built that way on purpose as part of the screening

quote:

22. I have to 'act normal' to please other people and make them like me.
54. I get along with other people by following a set of specific rules that help me look normal.
people who could answer "never" to this:
people who get along with everyone just fine without deliberately modifying their behavior
people who are like "well, most people do react better when I put on the normal act, but I don't have to do it to get people to like me; I have two entire friends I drop the mask around"
people who are like "no, I do not feel I 'have' to make other people like me, and so do not mask"

quote:

25. It is difficult for me to understand how other people are feeling when we are talking.
39. I cannot tell when someone is flirting with me.
44. I cannot tell if someone is interested or bored with what I am saying.
68. I can tell when someone says one thing but means something else.
people who could answer that they definitely easily understand the other person's intentions:
people who actually understand the other person's intentions
people who directly ask the other person about their intentions and accept the response as fact
people who do not know they are misinterpreting the other person's intentions, because no one ever told them so directly

quote:

10. I always notice how food feels in my mouth. This is more important to me than how it tastes.
19. I am very sensitive to the way my clothes feel when I touch them. How they feel is more important to me than how they look.
20. I like to copy the way certain people speak and act. It helps me appear more normal.
two separate statements! conflicting answers for each!!

quote:

28. It is very difficult for me to understand when someone is embarrassed or jealous.
ambiguous as to whether this is understanding that someone is embarrassed/jealous or sympathizing with why they are

etc etc

Tjadeth fucked around with this message at 04:46 on Aug 13, 2022

Dance Officer
May 4, 2017

It would be awesome if we could dance!

Mu Zeta posted:

I scored 132. I started suspecting within the last 4-5 years that I might be on the spectrum especially after learning that it is a spectrum and not just rain man. I guess I should make an appointment for an official diagnosis at some point, but I think I've done a decent job hiding it my whole life since not one person has ever suggested I was autistic or had any kind of mental issues except that I was shy.

Thinking about it now I do remember some things that people pointed out to me throughout my life.


- I've made a couple people cry in high school because I apprently made some rude or blunt statement and I honestly couldn't remember saying anything mean.

-Friends have also told me a few times that I will hang up the phone in the middle of a conversation without saying good bye. I guess I'd say something like "all right" and hang up thinking it was over.

-When I was in grade school, maybe in 2nd-4th grade, I remember being told constantly that I was being disruptive and loud. My parents were called in to meet the teachers several times to discuss this. One time I was taken out of class and some new teacher or counselor or something would show me a bunch of pictures and asked me what I saw. I distinctly remember one picture was obviously Mexican people celebrating something so I said it was maybe people celebrating Cinco de Mayo. I was like 8 so I didn't know what cinco de mayo even was, it was just the only Mexican holiday I could think of. She said it was actually Mexican celebrating the Day of the Dead. I don't remember doing any kind of testing like that again.

- also I do maintain eye contact but admit that it's exhausting.

Fwiw I made it to 25 without anyone ever asking me if I was autistic, or using it as an insult against me.

The things you mention are pretty strong indicators for autism though, in my opinion.

Cloacamazing!
Apr 18, 2018

Too cute to be evil
Can anybody recommend a good book (fiction or non-fiction) written from an autistic perspective? My mother asked me if I knew any, because she would like to better understand the way I see the world. I haven't found anything like that so far, aside from the one recommended earlier in the thread, and I draw the line at recommending romance novels to my mother.

Poil
Mar 17, 2007

I got 166 on that test and I totally agree that some of the questions were confusing and I wanted to have them clarified several times. :argh:

Cloacamazing! posted:

Can anybody recommend a good book (fiction or non-fiction) written from an autistic perspective? My mother asked me if I knew any, because she would like to better understand the way I see the world. I haven't found anything like that so far, aside from the one recommended earlier in the thread, and I draw the line at recommending romance novels to my mother.
The best one I've read was an autobiography about their life up to and after they got diagnosed in their early 30s: konsten att fejka arabiska, but it's in swedish so it's unlikely to be helpful and I couldn't find anything about if it's been translated sorry.

Bobby Deluxe
May 9, 2004

I hear people nowadays saying there are problems with it (I haven't read it recently), but The Curious Incident of the Dog in the Nighttime was lauded when it came out because the main character is an autistic boy. I don't remember if it's from his perspective but it was for its time pretty well done.

E: It certainly helped give a lot of people more of a 'non rain man' view of what autism is.

for fucks sake
Jan 23, 2016

Bobby Deluxe posted:

I hear people nowadays saying there are problems with it (I haven't read it recently), but The Curious Incident of the Dog in the Nighttime was lauded when it came out because the main character is an autistic boy. I don't remember if it's from his perspective but it was for its time pretty well done.

E: It certainly helped give a lot of people more of a 'non rain man' view of what autism is.

I read that fairly recently and I really enjoyed it.

I've also heard good things about Temple Grandin's books. Haven't read any yet but they're on the to-read list after finishing NeuroTribes (review incoming).

Lien
Oct 17, 2006
<img src="https://forumimages.somethingawful.com/images/newbie.gif" border=0>

Cloacamazing! posted:

Can anybody recommend a good book (fiction or non-fiction) written from an autistic perspective? My mother asked me if I knew any, because she would like to better understand the way I see the world. I haven't found anything like that so far, aside from the one recommended earlier in the thread, and I draw the line at recommending romance novels to my mother.

I really enjoyed Sarah Kurchak's book-- I overcame my autism and all I got was this lousy anxiety disorder. Hannah Gadsby's book was good if a little heartbreaking in areas. I also have Nerdy, Shy and Socially Inappropriate by Cynthia Kim on my to read list, but I can't say how it is at this point since I'm only two pages in. These are all memoirs.

Unmasking Autism by Devon Price is also good so far. I'm halfway through. Devon Price is also a solid author, they wrote Laziness Does Not Exist, which is a good companion book for neurodivergent people imo.

I haven't read a ton of fiction with explicitly autistic protagonists, other than Kaia Sonderby's series, which is sci-fi. I enjoyed them.

I know I have some other ones kicking around but they're on a drive somewhere so if I remember, I'll come back and update this list.

ultrafilter
Aug 23, 2007

It's okay if you have any questions.


for fucks sake posted:

I've also heard good things about Temple Grandin's books. Haven't read any yet but they're on the to-read list after finishing NeuroTribes (review incoming).

Those are generally the standards but some of them are old and don't reflect current thinking.

Pththya-lyi
Nov 8, 2009

THUNDERDOME LOSER 2020

ultrafilter posted:

Those are generally the standards but some of them are old and don't reflect current thinking.

Yeah, same with Curious Incident

If she likes romance, The Kiss Quotient series has autistic characters written by an autistic woman. There is explicit sex in them, though, so you may not be comfortable discussing them with your mom.

for fucks sake
Jan 23, 2016

ultrafilter posted:

Those are generally the standards but some of them are old and don't reflect current thinking.

Yeah in NeuroTribes they mentioned that in her first book she talks about "recovering" from autism. At that time people were still pretty convinced a "cure" would be found.

SSJ_naruto_2003
Oct 12, 2012



This post got me to thinking.
https://www.reddit.com/r/autism/comments/wp09ls/why_is_there_an_increased_rate_of_autism

I feel like the entire comments are just full of people saying it's all diagnosis, but I don't think that's really the whole story?

My uncle has been teaching since 1985 (retired in 18) and we talked about autism earlier this year after I came to terms with my diagnosis.
He says that there's a lot more problems in general now, not just people being diagnosed, which tracks with what I would assume.

We all live near a bunch of pollutants, tons of stuff we assumed was safe for years causes cancer or hormonal issues, etc.

What do you think of this?

RPATDO_LAMD
Mar 22, 2013

🐘🪠🍆
Here's a question: Do y'all ever have trouble picking out human voices in areas with a ton of background noise, especially background chatter from other people speaking like a cafeteria or something? I got hearing aids briefly in high school but never really used them cus they just made everything louder, and the inability to pick out voices from a big cloud of background voices isn't really a relative frequency thing. I feel like I read online at some point that this could be an autism thing, like the language/hearing center of the brain is worse at prioritizing speech from background noise or something, but IDK how many other people have this experience

Bobby Deluxe
May 9, 2004

It's certainly a spectrum comorbidity. Usually more asociated with dyspraxia and dyslexia, but my auditory loop is delayed - my brain sometimes takes an extra second or so to process the noise someone is making into a string of words, if that makes sense.

I also have trouble multitasking and filtering out background noise, which makes the processing even worse, but even in a 1:1 situation with no background noise I still gently caress up.

SSJ_naruto_2003 posted:

My uncle has been teaching since 1985 (retired in 18) and we talked about autism earlier this year after I came to terms with my diagnosis.
He says that there's a lot more problems in general now, not just people being diagnosed, which tracks with what I would assume.

We all live near a bunch of pollutants, tons of stuff we assumed was safe for years causes cancer or hormonal issues, etc.

What do you think of this?
I'd be reluctant to attribute it to anything like that; partly because there's little or no evidence, but mostly because it leads to the kind of punitive thinking like 'vaccines cause autism' where the quiet part at the end is 'because autism is a bad outcome.'

I don't think that's what you/your uncle were getting at, but I think there are very large and influential social movements who would jump on that for the wrong reasons entirely.

What we need is not to be looking at how to prevent or 'cure' autism, but to be accepting that it exists, and that a lot of us with it need a little help sometimes.

Personally I think the increase in diagnoses is almost entirely attributable to people being more self-reflective nowadays, and the people in positions to spot these sorts of things being better educated than they were in the past.

My mum recently retired from running a playgroup and over the years she's been on a lot of training courses and recieved a lot more support as the years have gone on to help spot the signs early on. When I compare the ed psych I saw in my early twenties (who diagnosed me with 'cognitive dyspraxia' because there was no support policy in my LEA for ASD), the difference in understanding now compared to then is incredible.

It's hard to express properly without having been there and grown up at that time, but it's a culture shift in the same way that mental health patients were institutionalised and never spoken of again in the 1900s vs how they were treated from the 90s and 2000s. Similarly, the difference in how autism was percieved (if at all) in the 80s compared to how it is understood now.

I grew up thinking I didn't have it because I wasn't as serious as the only cases that were ever talked about. I thought that just because I was able to mostly keep my head above water I was OK.

If social attitudes now were like they were then, I wouldn't have sought out diagnosis, my GP wouldn't have referred me if I had, the charity who diagnosed me wouldn't have existed, the clinician wouldn't have had the training to deal with an adult, and I probably wouldn't have been diagnosed because it's not as disabling as they would expect it to be.

Autistic people have always been here, we're just better recognised and able to take off the mask now.

Bobby Deluxe fucked around with this message at 18:39 on Aug 15, 2022

dirby
Sep 21, 2004


Helping goons with math

RPATDO_LAMD posted:

Here's a question: Do y'all ever have trouble picking out human voices in areas with a ton of background noise, especially background chatter from other people speaking like a cafeteria or something?
Auditory processing disorder exists. But also I had those same symptoms. Except, in my case a hearing aid (set to make speech louder rather than everything louder) fixed it because it's definitely just an issue with my ear.

Cast_No_Shadow
Jun 8, 2010

The Republic of Luna Equestria is a huge, socially progressive nation, notable for its punitive income tax rates. Its compassionate, cynical population of 714m are ruled with an iron fist by the dictatorship government, which ensures that no-one outside the party gets too rich.

I have fantastic hearing, I hear loads of things other people can't (or I'm suffering from constant auditory hallucinations).

But my brain is not good at selectively going "you can ignore this noise now - but pay attention to this noise". It's kinda all or nothing. I hear all the things or mentally turn off all the things.

My partner hates it.

Poil
Mar 17, 2007

RPATDO_LAMD posted:

Here's a question: Do y'all ever have trouble picking out human voices in areas with a ton of background noise, especially background chatter from other people speaking like a cafeteria or something? I got hearing aids briefly in high school but never really used them cus they just made everything louder, and the inability to pick out voices from a big cloud of background voices isn't really a relative frequency thing. I feel like I read online at some point that this could be an autism thing, like the language/hearing center of the brain is worse at prioritizing speech from background noise or something, but IDK how many other people have this experience
Yes that happens. But even if I can hear the voices it's like they become part of the noise or my brain just doesn't translate the sounds into speech so they might as well be speaking in a language I don't understand. Sometimes my ears will just lock to a different conversation nearby and it's all I can listen to while I don't hear what the person in front of me is saying.

for fucks sake
Jan 23, 2016

SSJ_naruto_2003 posted:


I feel like the entire comments are just full of people saying it's all diagnosis, but I don't think that's really the whole story?

I just finished NeuroTribes and they make the case quite strongly that it is increased diagnosis. They track changes to the DSM and increased awareness and training with spikes in incidence rate.

The researchers who were responsible for the widening of the definitions in the DSM predicted this outcome, but no one listened to them at the time.

Edit: also the hereditary aspect is boosted by both autists having an easier time dating with the Internet, and being more likely to find other autists to reproduce with. Not sure what the size of the effect is here though.

for fucks sake fucked around with this message at 19:56 on Aug 15, 2022

Mecca-Benghazi
Mar 31, 2012


On top of all that, there's just a lot of ways your brain can be overloaded with information now as opposed to then, which can make autism more obvious

Perestroika
Apr 8, 2010

RPATDO_LAMD posted:

Here's a question: Do y'all ever have trouble picking out human voices in areas with a ton of background noise, especially background chatter from other people speaking like a cafeteria or something? I got hearing aids briefly in high school but never really used them cus they just made everything louder, and the inability to pick out voices from a big cloud of background voices isn't really a relative frequency thing. I feel like I read online at some point that this could be an autism thing, like the language/hearing center of the brain is worse at prioritizing speech from background noise or something, but IDK how many other people have this experience

Oh, absolutely. I was on a work conference a while back and later in the day they had music running while everyone mingled, and I positively could not comprehend a single thing anybody said. I could hear sounds they were making, but unless they were outright shouting in my ear it just didn't resolve into words.

Lottery of Babylon
Apr 25, 2012

STRAIGHT TROPIN'

Perestroika posted:

I could hear sounds they were making, but unless they were outright shouting in my ear it just didn't resolve into words.

This is how it is for me. A year ago I thought I'd actually "grown out of it"; of course, the truth was that I just hadn't encountered it recently because I'd just stopped spending time in noisy environments.

organburner
Apr 10, 2011

This avatar helped buy Lowtax a new skeleton.

I love and hate bars for audio reasons. The music is always way too loud when I just wanna talk with people and it fucks me up.

And quite often someone says something to me, I go "what?" then my brain interprets the words they said and now my what is redundant and it makes me feel like an rear end.

Bobby Deluxe
May 9, 2004

I absolutely cannot concentrate if I'm sat too close to another table at a restaurant with someone talking too loud.

Dance Officer
May 4, 2017

It would be awesome if we could dance!

SSJ_naruto_2003 posted:

This post got me to thinking.
https://www.reddit.com/r/autism/comments/wp09ls/why_is_there_an_increased_rate_of_autism

I feel like the entire comments are just full of people saying it's all diagnosis, but I don't think that's really the whole story?

My uncle has been teaching since 1985 (retired in 18) and we talked about autism earlier this year after I came to terms with my diagnosis.
He says that there's a lot more problems in general now, not just people being diagnosed, which tracks with what I would assume.

We all live near a bunch of pollutants, tons of stuff we assumed was safe for years causes cancer or hormonal issues, etc.

What do you think of this?

That this is nonsense. The amount of pollutants that we're exposed to has drastically decreased over the past several decades.

girl dick energy
Sep 30, 2009

You think you have the wherewithal to figure out my puzzle vagina?
“Pollutants cause autism” is just a new redressing of the same Autism Speaks-style ‘it is a disease that needs curing’ handwringing that exists solely to change us from people who think or act differently into victims who don’t understand their own needs.

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Stoca Zola
Jun 28, 2008

organburner posted:


And quite often someone says something to me, I go "what?" then my brain interprets the words they said and now my what is redundant and it makes me feel like an rear end.

This is the worst, I have the same thing fairly often except I give myself the time to maybe interpret the sound, but then if I still don’t get it, the delayed “…..what??” makes me feel pretty dumb.

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