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Koivunen
Oct 7, 2011

there's definitely no logic
to human behaviour

Mr Rhodes posted:

1) Does anyone else have experience with this or a similar issue(e.g. Fibro, RSD, TOS, CRPS)?
2) Does anyone else have any releif from a spinal cord stimulator>?
3) Has anyone found any relief from a specific medication or exercises?
4) Does anyone else deal with bouts of frustration or depression over the whole ordeal?
5) Does anyone have any life hacks that make things easier?

1. While my pain definitely isn't as severe as the other people who have replied, I have something wrong that causes recurrent hip bursitis and pain from my neck to my knees, along with some other things. It's an ongoing mystery that is trying to be solved, but guesses from my doc and PT have ranged from Lupus to hip labral tears. I've also had a few meniscus tears in my knees from stupid stuff like walking down a hill.

2. No experience on that, but I've heard really good things about mirror therapy. See #3.

3. Physical therapy! PT can do wonderful things, and maybe you could get hooked up with someone who does mirror therapy. I go to PT for the hip stuff and it definitely helps. Also, I sprained my neck and had shooting pains down my arm related to a work injury, and PT cleared that up completely. Since it's been so long since your initial injury, getting worker's comp to cover PT might be difficult, but it was covered for me. If you've never had PT it's worth a shot, apply for comp coverage again, the worst thing they can do is turn it down (but go anyway). They also got me a SI belt that helps. I go to the gym when I can and do elliptical and weights which helps. I've also had cortisone injections in my hips but they haven't really done anything, it wears off in a matter of days. As far as meds, NSAIDS most of the time, and when it gets really painful, Lortab.

4. My main issue is that nobody knows what is causing this. I'm only 25, I shouldn't feel the way I do. On days where it's really painful and I don't feel like doing anything I get pretty frustrated. I just want to know what's wrong, I don't care if it's bad news, at least I will know. Some days I wonder if I am just a huge baby and it really isn't that bad and I have a low pain tolerance or something. When I'm asked to rate my pain and I say "It can get as bad as an 8," that's when I feel the most pathetic.

5. Stay active. It's ok to have days where it's too painful to do anything but you should stay active more often than not. I have a relative with a terrible back and weed helps them tremendously. If you haven't been to a pain specialist, see if you can get a referral.

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