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I have chronic migraines so severe that I'm disabled (but not covered by work disability insurance, thanks so much). Years ago, when the migraines weren't so bad, I learned to do self-hypnosis to control the pain. It turned out to be useless then because as soon as I broke out of the hypnotic trance the pain came back.  Down the road, when the migraines became horrible, I discovered that, while I lay in the dark room with the pretty flashing lights and the hypersensitivity, putting myself in the trance let me copebetter. It's especially useful while waiting for the heavy drugs to kick in.So. Working pain meds are better. But if you can't find meds that work, think about trying self-hypnosis. My doctor taught me to do it in a couple of sessions. For me, it doesn't disappear the pain, but it drops it down a point or two.
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Jun 27, 2014 17:21
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meteloides posted:
Meds questions aside, chronic pain sucks, and by everything I've heard fibromyalgia sucks double because of the exhaustion. I'm sorry.
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Jul 7, 2014 19:07
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meteloides posted:Yeah. Lyrica didn't seem to do anything except make me gain a lot of weight. I'm still trying to figure out how to lose it when I can't exercise very well. I finally went to my migraine specialist and said, "Look, you want me to exercise, but I've been inactive so long because of the migraines that I exhaust myself when I try." He gave me a prescription for physical therapy; now I'm seeing a PT twice a week to create an exercise program that works with my disability. The great thing about the PT (again if you can afford it) is that s/he meets you where you are, not where you ought to be. I told mine that, no, fifteen minutes of walking really did make me sick, and right now I'm doing large-muscle (thigh/buttock/core) exercises with breaks to breathe and rest. If your doctor approves it, and if you can afford it, a qualified PT may be able to help you find some way to move that doesn't make the fibro worse. quote:I seem to be allergic to Imitrex. A doctor tried me on Relpax once, which worked pretty well, but at 6 tablets being considered a 30 day supply, it wasn't feasible. It's really common for flickers to trigger migraines for people: light through trees, light through Venetian blinds, repeated jump-cuts in videos or movies, fluorescent lights, even certain black-and-white patterns. Who knows what's going on.Thank you. I feel bad constantly word-dumping. [quote] Actually, I'm relieved every time I remember that it's not just me, and that I'm not just imagining it all. There's no way to "prove" a migraine; it's all based on personal testimony, which means that it's really easy for your insurance company to blow it off.
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Jul 7, 2014 22:29
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