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Vertigo Ambrosia posted:Was the Bronchiolis Obliterans a common complication of a lung transplant or was it just something that happened completely unrelated? It's basically chronic rejection and pretty much inevitable for lungs.
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Mar 2, 2015 07:27
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| # ¿ May 17, 2024 08:31 |
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Turpitude posted:I support death with dignity but her age makes it complicated. I don't know the wishes of her parents or the extent of her condition. Cystic Fibrosis is an incredibly variable disease. They say it 'used to' be a childhood disease, but it can still be extreme enough to be lethal to some little ones. As an example from my own life, I know a man with CF who was born in 1969. He only needed his first transplant in 2011. Meanwhile my sister was born in 1977 and her condition was severe enough that she didn't make it past the age of 6. So your parents already knew they were carriers. Did they give any thought to things like adoption? Or did they make a conscious decision to roll the dice again? Do you have any other siblings? Do you know how they took your diagnosis given that it was their second time around and (I assume) an informed decision? Any "regrets" on their part or would they do things differently? I'm interested in this type of decision making process when there is such a high chance of something going wrong. I think the stakes are much lower nowadays given the availability of early genetic testing.
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Mar 6, 2015 07:14
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Did your wife undergo any genetic testing?
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Apr 29, 2015 20:52
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