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FAN OF NICKELBACK posted:The worst part, and I'm going to go wrestle sleep after this, is when you realize you have always been wrong about what brain damage really is. the brain is like a computer, its very finely built to perform many functions. if you destroy it or break it critically, it stops working, but if you very slightly damage or bruise certain parts, it'll (metaphorically) glitch and not work properly but still work. most mental illnesses occur simply because the brain lacks the facilities to do or manage certain things, or they just don't work properly, its kind of hosed up how delicate this poo poo is but we need to do anything. anyway OP, im sorry for what you have to go through, stay safe friend
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# ? Feb 22, 2016 13:56 |
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# ? May 2, 2024 15:02 |
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FAN OF NICKELBACK posted:just go write wills ok, even if you're in your 20's or whatever You do it. Seriously. You are currently your kid's only conscious parent. Get a living trust set up asap. It barely matters if you have any actual possessions or money to transfer. The nonmonetary stuff is just as important. Don't fret too much about the kid's reaction. It doesn't mean she's any more psycho than a regular kid. She just lacks the brain development and experience to know how she should react to this kind of trauma. Besides people grieve differently from one another, even speaking purely of adults. You're probably sick to death of sympathy by now, so I'll finish by saying it's important to not lose hope. Your wife is still alive. Weird poo poo happens sometimes. Even if there does come a time for you to make the call, you have a daughter you need to remain strong for. The world is still limitless for her and all her best years are ahead of her. You can make that happen with or without your wife. Oh and since I can't share my condolences, gently caress you instead. You piece of poo poo. I hate you. Your posting sucks.
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# ? Feb 22, 2016 14:20 |
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I have no idea what to say other than to wish you and yours well, you shouldn't have to be dealing with this. This ought to be in E/N, where you'd maybe get more genuinely helpful advice, or more likely just a little bit less trolling.
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# ? Feb 22, 2016 14:46 |
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Enfield posted:also op please talk to someone who isnt loving retarded which is what gbs is, also stupid as poo poo, and smells bad yeah you should probably talk to someone who understands how lovely grieving is OP grief can go eat a loving dick as far as im concerned
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# ? Feb 22, 2016 15:10 |
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Nathilus posted:You do it. Seriously. You are currently your kid's only conscious parent. Get a living trust set up asap. It barely matters if you have any actual possessions or money to transfer. The nonmonetary stuff is just as important. He said he's already making a living will so yeah
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# ? Feb 22, 2016 15:19 |
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sout posted:I have no idea what to say other than to wish you and yours well, you shouldn't have to be dealing with this. I mean good looking out and all, but I really can't sufficiently underscore how completely useless, uncomfortable and unnatural being inundated with pity and empathy is on the reg, and finding it here would feel twice as foreign. Also I mean . . . I dunno if really I'd look for or take advice or anything unless some neurologist happened to be reading and was like "hey try this reasonable thing! it might actually miracle something, check out this study!" Overall, it's not exactly a thing that has a whole ton of available perspectived experience or clear paths back to every day life, y'know. I think I would actually feel worse if someone in even a slightly less shittier situation actually logged into Something Awful looking for a return on emotional investment. I mean, drat. That would be wounding to observe. I guess questions are cool though, it feels good to just lay things out and think things through in ways i might not have, but I still can't go into a lot of identifying sorta info or details for reasons.
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# ? Feb 22, 2016 15:54 |
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Squish posted:So what was the actual surgery that has lead to catastrophic blood loss? How long was she in the post-op ward before discharge? There's no such thing as minor surgery
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# ? Feb 22, 2016 15:56 |
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oh also here's a thing in case anyone wants to see how bad anoxic eschemia actually is, and what it looks like to beat the odds and come back after 10+ minutes of CPR after your heart sits around without a job to do. consider this a psa that i am kinda upset never appeared on tv when i was a kid. if anyone feels as though i am overestimating the damage, feel free to play devil's advocate, i ain't gonna be mad at you [summarized transcript] code:
FAN OF NICKELBACK fucked around with this message at 16:13 on Feb 22, 2016 |
# ? Feb 22, 2016 16:10 |
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good luck op. i am very sorry for your loss.
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# ? Feb 22, 2016 16:14 |
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FAN OF NICKELBACK posted:I mean good looking out and all, but I really can't sufficiently underscore how completely useless, uncomfortable and unnatural being inundated with pity and empathy is on the reg, and finding it here would feel twice as foreign. you came here to vent, and we came here to read poo poo, and since you posted this in the middle of our shitposting, we get to emotionally process our distant grief, imagining if it were our own, by saying how sorry we are.
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# ? Feb 22, 2016 16:17 |
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i didnt read any of it. i refuse.
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# ? Feb 22, 2016 16:18 |
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I don't get it
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# ? Feb 22, 2016 16:23 |
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Okay I read the interesting parts. Why did they take out her blood with surgery? Doesn't seem that smart to me. Did you get a refund?
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# ? Feb 22, 2016 16:25 |
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a hole-y ghost posted:Okay I read the interesting parts. Why did they take out her blood with surgery? Doesn't seem that smart to me. Did you get a refund? Save on your bills by giving blood while you're split open for a nice discount
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# ? Feb 22, 2016 16:37 |
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jump as high as you can and measure it. then tomorrow try to jump even higher. you'll be the new michael jordan in no time
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# ? Feb 22, 2016 16:37 |
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So she got brain damage from listening to nickelback?
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# ? Feb 22, 2016 16:42 |
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Well drat, that really sucks.
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# ? Feb 22, 2016 17:34 |
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dad gay. so what posted:i didnt read any of it. i refuse. brain dead gay. so what
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# ? Feb 22, 2016 17:40 |
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OP I'm one of the people that deals with all the ICU and ventilator stuff your wife is going through. Super sorry to hear about this but wanted to say I wish all families/spouses were as reasonable as you seem to be. Have you got in touch with social working at the ICU? They can at the least put you in touch with some resources that might make this all a bit easier. Feel free to PM me if you would like clarification on anything that you're hearing or being told but don't think to ask about at the time ETC. e: Actually I'm going to edit this and just add a few things You seem resentful about not being informed that outcomes can be really bad after CPR, and that you feel you were fed misinformation about the actual state of your wife when they told you they were trying to stabilize her rhythym. The intent was not to be misleading - when someone is in cardiac arrest they will usually have cardiac electrical activity still, it's not like the movies where someone's ECG just turns into a flatline (usually). When you were told they were trying to stabilize her rhythym she was probably in and out of many different electrical states (ie: ventricular tachycardia/fibrillation, pulseless electrical activity, etc). The other thing is that even if you knew outcomes were poor for cardiac arrests, you'd still have wanted them to do CPR due to the chance at a GOOD outcome. To be honest, even if you didn't want it the team would have done it anyways because it's the right decision. For the rest of you goons, have a conversation with whoever is going to be speaking to the medical team on your behalf if you have some incident happen, and express strongly how you feel about whether you would want to be kept alive if you're unable to move/speak/are likely no longer cognititive. VelociBacon fucked around with this message at 17:56 on Feb 22, 2016 |
# ? Feb 22, 2016 17:47 |
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drat OP that sucks man I'm sorry
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# ? Feb 22, 2016 17:50 |
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VelociBacon posted:OP I'm one of the people that deals with all the ICU and ventilator stuff your wife is going through. Super sorry to hear about this but wanted to say I wish all families/spouses were as reasonable as you seem to be. Have you got in touch with social working at the ICU? They can at the least put you in touch with some resources that might make this all a bit easier. I'll only take issue with the fact that it's the "right" decision. She passed out from blood loss 5-7 minutes away from the hospital, ~6 minutes after her bleeding began. Think about that math for a moment, as well as that she was, confirmed, asystole on arrival. Regardless of age, it becomes a very trepidatious argument to assert that pushing through 12 minutes of CPR is the "right" thing to do. (www.ncbi.nlm.nih.gov) posted:http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074242/ 10,000 people have an OOH arrest. 500 do not stay dead. 25 go back to work and have neat water-cooler conversation. of the remaining 475 . . . Approximately 40% enter a persistent vegetative state. So thats . . . 190 situations that are emotionally and financially devastating to an entire family for an untold and ongoing number of years. That leaves us with 285 not-dead people (hooray you did it!) Mild to moderate deficits are seen in 34% (96) and severe cognitive deficits in 17% (45) the remaining 144 have some memory issues and go home eventually. So, and I'm sure there's contradictory studies and forgot to link them all as I went, I'm going to have to say that it's even mathematically hard to pronounce it the right thing to do. There's a greater chance that you're financially straining entire families for indefinite amounts of time, keeping them emotionally hostage to a hospital's visiting hours, than actually saving anyone. Sure, hypothermia and other techniques can increase the ratio--but there are some clear situations (hypothermia not possible, timeframes not met etc etc) in which it's almost irresponsible to set it firmly as a matter of standard policy. If my math is off, whoops. Still though, it's not going to be that far off.
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# ? Feb 22, 2016 19:05 |
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it's "the right thing" because our society does not like death or dying, and will refuse it to you or your loved one at most opportunities.
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# ? Feb 22, 2016 19:08 |
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uh that really sucks i'm sorry to hear that it happened ... yup
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# ? Feb 22, 2016 19:08 |
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What the gently caress is wrong with your family? Your wife's life is hanging in the balance and their response is "keep your private life private"?! Kick them all out of you life.
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# ? Feb 22, 2016 19:32 |
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his FIL has a sweet camaro and he still wants to take it fo ra spin on saturdays
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# ? Feb 22, 2016 19:33 |
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FAN OF NICKELBACK posted:I'll only take issue with the fact that it's the "right" decision. I think you mean 1000 not 10,000? Are you saying that ~20% of ooh cardiac arrests that need CPR end in a vegetative state (your 190 situations) and thus it isn't worth risking CPR to save the other 285 people? Not quite following what you're saying here... are you saying CPR made your wife's situation worse or are you saying CPR saved her body so to speak but she's still in a vegetative state so what's the point? As in, without CPR she would have died but that's better than vegetative state? If it's the latter I see what you're saying but imo you're speaking from grief because surely the people who do end up okay would have preferred to go through CPR rather than have the ER go 'well they're probably hosed anyway no point.' I think most people would opt to take that chance that they are saved rather than die and not risk brain damage. I know I would, and I'd also want the hospital to do absolutely everything in their power to try and save someone I loved. If I'm reading your post right, 285 people entered an ooh cardiac arrest, didn't recover on their own and needed CPR, and made it home okay versus 331 people who ended up with some form of brain damage. But those 331 people would have been dead anyway so what you're saying is you would rather not take the ~ 50/50 chance that CPR would result in saving the person with no brain damage (or even the greater than 50% chance that you'd be saved with mild brain damage)? I get that you're in a lovely situation but I just don't see your point really. There isn't a conspiracy involved here to raise hospital costs by having people be in vegetative states and obv it's a lovely situation either way but given the risk involved I think most people would take the chance to live and maybe get brain damage rather than die for sure. And it isn't really the hospital's fault that there's no plan in case of bad poo poo FishionMailed fucked around with this message at 19:47 on Feb 22, 2016 |
# ? Feb 22, 2016 19:36 |
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Volume posted:What the gently caress is wrong with your family? Your wife's life is hanging in the balance and their response is "keep your private life private"?! Seems like a not terribly unreasonable response to an incredibly deeply personal tragedy. I mean I wouldn't do it myself but I could see why they wouldn't want all their friends and coworkers and facebook buddies suddenly sending them hollow messages about "i'll pray for u" or whatever
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# ? Feb 22, 2016 19:56 |
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Yeah... I get not wanting to blast things like that into the public space but at the same time I feel like OP should be allowed to take to someone about it if he needs/wants to. Maybe a middle road solution is warranted.
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# ? Feb 22, 2016 20:00 |
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They're good people. I'm not somehow under their control even if I seem resentful or irritated. I'm just respecting their process, and resentful and angry about everything. She was my best friend, and the partnerships behind and around that just made the world look a little different than it did before or does now.
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# ? Feb 22, 2016 20:23 |
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I mean yeah that's completely understandable. I can't even imagine what I'd do in such a situation
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# ? Feb 22, 2016 20:32 |
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I've seen lots of young otherwise healthy people have really good outcomes after this much CPR. It's definitely worth doing but I appreciate that it doesn't make this whole thing hurt less.
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# ? Feb 22, 2016 20:43 |
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Again, context matters. If you cannot do hypothermic treatment, the patient has lost a significant enough amount of blood to stop their heart and you know the brain has likely been out of oxygen for minimum of three minutes . . . then maybe you shouldn't go all the way to 12 minutes with your CPR. In that and similar cases it's almost irresponsible as an implemented standard policy. You, at that point, are much more likely to be creating an awful situation for everyone involved then truly save even one person in the context of anything resembling who they were before your efforts. Driver's licenses should basically have two numbers in the lower right corner, the first being the number of minutes without oxygen that you're willing to accept resuscitation efforts (if known), and the second being how many minutes of CPR you're willing to acccept if the first number isn't known or has been maxed.
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# ? Feb 22, 2016 20:57 |
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both my numbers would be 69
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# ? Feb 22, 2016 21:07 |
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FAN OF NICKELBACK posted:Driver's licenses should basically have two numbers in the lower right corner, the first being the number of minutes without oxygen that you're willing to accept resuscitation efforts (if known), and the second being how many minutes of CPR you're willing to acccept if the first number isn't known or has been maxed. That's not necessarily a bad idea but then you kinda get into the 'can patients really give informed consent given their lack of medical knowledge' can of worms imo.
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# ? Feb 22, 2016 21:18 |
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It won't help much OP but you convinced me to write up a will. I don't have a wife or kids, but I never thought my folks would have to figure out if I'd wanna be a vegetable. Spoiler alert, I'm gonna have them dump my stupid malfunctioning bod in the trash, so if I have an untimely death you've helped my fam. Thanks OP.
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# ? Feb 22, 2016 21:46 |
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Chiming in as a neurology resident that has dealt with more than a few cases of anoxic brain injury related to cardiac arrest. You will have to forgive me if I am inelegant as I have just finished a week of nights. First, I am so sorry for the living hell you must be going through. I would speak about anoxic brain injury in cardiac arrest, but it seems you already have the basics (http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074242/). The science behind the hypothermia protocol isn't that sound and it is difficult to show that it actually has a significant benefit (what ethical person would run a randomized control trial on this?). In my experience all the hypothermia protocol does is make prognostication much much more difficult since there is very little good data about outcomes. From what you have said about your wife's case, it sounds like she has not woken up after 3+ days as well as had post arrest myoclonus (did she just have myoclonus or status myoclonus?). From a general perspective these are not favorable prognostic signs. However, I don't know your wife's case so I don't know all the nuances and I don't intend on giving medical advice. I tell all families this, that as her surrogate you have to make decisions in her best interest, no matter how heart rending it is. It does not sound like she is brain-dead (which, frankly, would make the decision making much easier), so her quality of life has to be considered and what she would find an acceptable quality of life. In the end there are no right answers with these sorts of questions. Again I am very sorry that you are going through this, you have my sympathies.
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# ? Feb 22, 2016 23:03 |
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These flesh vessels really loving suck
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# ? Feb 22, 2016 23:05 |
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Your Dead Gay Son posted:These flesh vessels really loving suck Do they loving ever.
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# ? Feb 22, 2016 23:20 |
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Sever
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# ? Feb 22, 2016 23:28 |
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# ? May 2, 2024 15:02 |
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Magellanicice9 posted:Chiming in as a neurology resident that has dealt with more than a few cases of anoxic brain injury related to cardiac arrest. You will have to forgive me if I am inelegant as I have just finished a week of nights. She never entered a coma, just straight into "wakeful unawareness" once they took the propofol off after seizing ceased in just over 24 hours. her pupils ceased being bilaterally dilated however and, though they don't move meaningfully or much at all really, they do respond to light. She does the basic things like chews on her intubation, yawns/gags/pain reflexes to an extent, and that's just about it really. lotta decorticate posturing. The first MRI on day three only diagnosed her with Posterior Reversable Encephalopathy Syndrome, though that seems to be subsiding for the most part with no other visible changes noted. The actual MRI results from the second MRI were posted a bit earlier up as well. Go hog wild. Her eyes open, she seizes as a default response to basically anything, and the only thing that even seemed like it might have been a good sign was three or four days ago when she slowly lifted her arm up with her hand/wrist limp and moved it slowly away from her body towards family. Pretty sure that was just "a thing that occured" however in hindsight.
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# ? Feb 22, 2016 23:38 |