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HenryJLittlefinger
Jan 31, 2010

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Tinnitus Crew! We need a gangtag, just a little gif scrolling "EEEEEEEEEEEEEEEEEEEEEEEEEEEEEE"

Here are a bunch of observations and things that work for me:

Learn the triggers that bring on bad bouts of tinnitus. Mine are alcohol (3+ drinks), prolonged loud noise especially from wind (motorcycle riding at high speed), prolonged white noise with no earpro (driving on the interstate, running water like in an aquaculture facility), sinus headaches, driving at night, and other stuff that promotes general head/neck/eye tension.

Experiment with earplugs for all situations, just go nuts. Use them all the time, because tinnitus absolutely can get worse.
I've finally settled on disposable foamies (3M, Howard Leight) with 32-33 NRR for loud, acute stuff like shooting, power tools, motorcycle riding, loud concerts. I have a couple pairs of Etymotic ER20X for loud social situations (bars, professional socials, movies, quieter concerts). These are pretty huge for me, as they knock down the background babble that makes understanding people speaking difficult, and helps ease social anxiety coming from hearing loss. Shooting anything bigger than a .22LR now gets both foamies and good earmuffs.

Watch the volume on your earbuds, keep it low and sacrifice any ideas about preserving sound quality for music through them. More than a couple hours with mine in, regardless of the volume, and my eeeeeeeeeeeeeeee goes nuts.

Keep your ears covered when it's windy.

Weed helps me deal with acute bouts, especially if I'm trying to fall asleep. My dr said we could go down the road of antidepressants or benzos if it really started to affect my wellbeing, but I'm trying to avoid that.

Getting somewhere dark and quiet, but not silent helps.

White noise at night.

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HenryJLittlefinger
Jan 31, 2010

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some_admin posted:

So, I’ve had a second hearing test, with identical results. Contrast MRI, nothing unusual revealed.

Since February, I’ve experienced having to leave a bunch of situations that were uncomfortable for my hearing, including the trampoline park (I was wearing muffs!), a going away party, indoor pool, elementary school science fair, convention karaoke party.
I quit the band a couple weeks ago, it was just too painful.

Spouse complained about my detachment and lack of input, lack of energy, and it opened up a conversation between us which is good. I’m depressed, emotional, a little manic, much more focused/busy than I used to be (flight response to the noise, I think?) and because focusing on something takes it away. Patience is way down or way up depending on situation.
Going in for physical next week so I’ll see about some counseling because honestly the only thing that is helping is staying busy.

I measured it and it’s about 72-82 db apparent to me (measured using iPad to play sound and iPhone held at right ear so I can measure vs the left ear it lives in).

I’m not the person I was 6 months ago, this sucks. I balance this with “other people have REAL problems” , but I think I am going to be mourning my former life and adjusting to the “new normal” forever. Lots of empathy for anyone with invisible symptoms rn. The only shred of silver lining here is that tinnitus has really put my physical issues into the background, so yeah, too beat by tinnitus to notice my knees and thigh pain, this is great huh?

Livin ain’t easy, no doubt.

Jesus, you're the tinnitus case that Dr's prescribe antidepressants for, huh? That sucks, I'm really sorry about it. I hope you get some relief and that relationships are repaired fast. My tinnitus and hearing problems have definitely affected mine at times. For instance, right now I'm hiding out in the house rather than hanging out with my wife and neighbors because I can't handle the kids screaming and I'm probably going to have to make up for it. I hope solutions come quickly, that's a tough way to live.

Also, comparative suffering helps nobody. Your problems are real and legitimate, it doesn't matter if someone else's struggle may be more difficult.

HenryJLittlefinger
Jan 31, 2010

stomp clap


some_admin posted:

We also went to an annual 3 day event for families with a particular interest (i can’t identify it further, sorry), it went very very well (75-80 similar families) and being open and engaging and forcing myself out of my shell was a liberating experience as it always is.
Nudist naturist, huh?

quote:

Staying busy is definitely a key, being emphatic with my speech and emphatic with my listening is helping with communications.
Going to make an appt for hearing aid probably, I think 30-40% of my conversations with my wife now include “what?” at some point.
I realized that doomscrolling was not helping my attitude, so I’m not reading the biosphere collapse, trump, Ukraine war, BWM, or anything much lately. Helps. Also, when driving I quit listening to the news. Just classical music now, Disney music when kid in the car.

Thanks all of you for reading and commenting .

My boss has similarly bad tinnitus and says his hearing aids help, at least some.

I think tinnitus should be given the same kind of consideration as chronic pain. If you're dealing with depression, anxiety, isolation, whatever, it's going to make navigating those challenges worse. So any of the exacerbaters of the core issue you can remove (the trump lol thread, news) make dealing with those other modifiers you can't fix quite as easily (tinnitus, hearing loss) easier. Healthy diversions are good for me. I'm back in the mode of working in my very quiet garage on any of 15 different projects in the evening with music quietly playing rather than reading SA and low key freaking out about this lovely world. A structured exercise regime helps too, because it takes concentration and fills a few evenings a week.

How much are you talking to your therapist about the hearing issues? I haven't mentioned them to mine at all, maybe I should.

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