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N. Senada posted:I'm low-tier poster N. Senada and I am in need of a kidney. This is a serious post. I am on a transplant list with about 90,000 people on it. I am not told what my 'number' is but, eventually, if I live long enough, I will get selected for a transplant. I finally got on the list this year when my GFR (the metric for my condition) hit a new threshold + successfully interviewing with some social worker staff, proving I have insurance, and promising not to do drugs. if you asked for a liver I might help you, but I only got two Kidneys and I kinda need both
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Oct 1, 2023 04:40
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cruft posted:I like to take the past into consideration when I start getting angry about why we're not moving faster into the future. The fact that we can do organ transplants less than 150 years after surgeons finally agreed it was important to wash their hands: that's incredibly fast progress. this... gives direction to my feelings I'm looking into blood drives near me 
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Oct 1, 2023 04:42
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RavenousScoot posted:this... gives direction to my feelings good on you. Im O+ and give blood about once every 3 months
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Oct 1, 2023 04:46
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I almost donated a kidney to a goon. He got a cadaver match at the last minute, so I ended up donating to a stranger (it’s called an undirected donation). I seriously, %100 recommend donating if it’s at all possible. Testing and exams up to the donation can be time consuming, but there is no cost involved. Recovery was easy, and I have had no problems having just one kidney. You get to sit around for six weeks, your state will probably compensate you for any lost wages, and you get to genuinely make a difference. If you’re interested in learning more, check out the thread GPF made: https://forums.somethingawful.com/showthread.php?threadid=3854844&userid=0&perpage=40&pagenumber=1 Domus fucked around with this message at 05:27 on Oct 1, 2023 |
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Oct 1, 2023 05:24
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RavenousScoot posted:this... gives direction to my feelings   Domus posted:I seriously, %100 recommend donating if it’s at all possible. Kickass av
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Oct 1, 2023 16:44
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Turrurrurrurrrrrrr posted:Age: You should be between 18 and 70. Sorry op I actually had a moment of thinking maybe I could actually do this because I do for some reason still care about people but I'm obese so I think they might not want to take the anesthetic risk? Or it makes the surgery harder on account of all the fat? I hope you find someone buddy 
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Oct 1, 2023 16:57
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Dixville posted:Sorry op I actually had a moment of thinking maybe I could actually do this because I do for some reason still care about people but I'm obese so I think they might not want to take the anesthetic risk? Or it makes the surgery harder on account of all the fat? I hope you find someone buddy It makes the surgery harder but it's not an immediate rejection. Why don't you try giving blood a few times and see how you feel about it
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Oct 1, 2023 17:23
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cruft posted:It makes the surgery harder but it's not an immediate rejection. Why don't you try giving blood a few times and see how you feel about it
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Oct 1, 2023 17:30
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Oh I also eat a lot of edibles so they may not be keen on that.
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Oct 1, 2023 17:32
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I want to say that the positive vibes are nice to receive Fun fact, Iran is the only country (as far as I know) that legally allows you to sell your kidney. This has resulted in Iran being one of the only countries to not have a waiting list for kidney transplant. The downside to that it’s usually the poorest people selling their organs to escape debt or help family. Most nations have blanket laws forbidding organ selling as you probably already know.
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Oct 2, 2023 08:53
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The United States let people sell blood for a while' and then hemophiliacs started coming down with AIDS, so they stopped.
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Oct 2, 2023 09:00
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I can’t give you money for your organ but I will learn your favorite song on guitar and play it for you.
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Oct 2, 2023 09:05
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so, based on my experience: 1. since you have end-stage renal disease, you qualify for medicare parts A&B as a supplementary insurance automatically. You still have to apply and it's something you should do immediately if you haven't. There are three "end-of-life" conditions that qualify a person for medicare and end-stage renal disease is one of them. It may not actually cover much, but it can help, especially as it covers a good chunk of the following... 2. there are 2 forms of dialysis: hemo and peritoneal. Hemodialysis is usually 3x a week, requires a special combo of an artery+vein to be made by minor surgery in your arm (which means you need to wear a special bracelet indicating that you can never have blood pressure taken on that arm, ever). You go to a center, they hook you up and you wait for the artificial kidney to clean you blood. There is a special diet and meds you take. I'm sure you have been informed of most of this. Hemodialysis is horrifically expensive for the healthcare system and sometimes the individual and a pain in the rear end but most people choose it over the alternative, which is cheaper and more convenient. Peritoneal dialysis is where they insert a tube into your abdomen, which you've got to keep clean. Then daily (while you sleep if possible) you hang bags of liquid and filters to help your body get rid of the junk that builds up. It's cheaper, uses less specialized equipment, often just as effective and isn't as inconvenient for the most part as it can be done at home after you're taught how to do it. Also it doesn't come with as many potentially serious complications except potentially infection of the site of the tube. 3. Swaps. You don't need a friend or family member or whomever to donate a kidney directly to you. Find a transplant center that is willing to do a swap or even a multi-swap. Essentially, the person willing to donate a kidney and you do all the regular health tests plus the six major antigen matches and offer your info up to be put on and compared to the lists of people on them who need kidneys and that have people willing to donate. Often these lists are not collated and are separated by hospital systems, region, etc but even 10-15 years ago there were attempts by groups at making master lists in order to get more viable, suitable organs to people who need them A swap is where the surgeons take a kidney from a donor who would not otherwise match whatsoever with a recipient and gives it to someone who WOULD have at least a partial (1/6 major antigen) match with a recipient, while the other donor who would not match with their recipient gives their kidney to you (or whoever has at least a partial antigen match). This can be done in pairs, or groups of 6, 8 and maybe larger and increases the pool of available kidneys that are more likely to not be rejected by their recipients within the first few weeks, months, years or have chronic rejection symptoms leading long-term damage. It's certainly possible to get higher major antigens matches this way and thus increase the likelihood of successful, non-rejecting transplants but above 3/6 major antigen matches outside of family is really rare, 5/6 extremely rare and 6/6 incredibly unlikely. Everyone involved has to be comfortable with their kidney going to someone they may not know, may never know and does not know how it will be used or treated, but it also means potentially giving life to more people as well as helping to save the person they do know. This is, of course, major surgery with potentially serious health complications but a single kidney in a healthy person will grow to help deal with the added strain. Cranappleberry fucked around with this message at 13:33 on Oct 2, 2023 |
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Oct 2, 2023 12:07
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btw, transplants require two teams of surgeons: removal+adding. So swaps require multiples of that and are a logistical and financial nightmare but the larger, more prestigious and liberal (medically speaking) transplant centers are usually willing to work out how to get it done. Depending on the state and hospital system, a donor might be able to get on "emergency" medicaid prior, which gives six months to a year of good coverage. If not, there is always the exchanges, albeit expensive. You can be financially responsible for them. As in, your insurance will cover their organ removal and potentially their recovery at the transplant center/hospital, though it will probably not cover prior testing or any complications or follow-ups. You may be financially responsible to them during their recovery. As in you pay their bills or get help (donations) to pay their bills while they recover. On top of your own. You can technically do all this out-of-pocket but this probably requires taking on debt, including medical debt which is ruinous and cannot be discharged. Likely one or more of the doctors involved (anesthesiologists, sometimes even one of the transplant surgeons) will not accept your insurance for whatever reason and within weeks expect a call from billing expecting a payment even though they haven't submitted anything to your insurance yet. This will continue for months and potentially years after and it helps to have people around you to help manage it. Keep binders. It sucks real, real bad but that's the system in the US. Dead donations- this is what you're on the list for. It's based on need, location (because time is of the essence) and suitability of the organ to the donor because an organ that has a higher chance of successful transplant is better. A small child in desperate need may not get an adult kidney because it simply cannot fit. There are other reasons someone may or may not get an organ over someone else close by and near their location on the list and they vary. Many people die organ donors, but the way in which they die or their health at the time of their death, leaves some or all of their organs unusable, and for good reason. It's not like House where they take anything because they can. You get what you get. Which means you may get a zero major antigen match, which means your body is much more likely to detect and try to kill the transplanted organ quite rapidly. You are given a ton of synthetic steroids and IV immunoglobulin to wipe out your immune system and soak up any antibodies that might deal damage to the organ. There are new, albeit dangerous treatments to help with this- total body radiation to kill your immune system and a bone marrow transplant from the donor so that you rebuild a new immune system friendly to the transplanted organ. This is usually done either in desperation or early on, and I'm not entirely sure they do it or would be willing to do it with dead donors. On top of that, since the kidney is not live and is not going from a live body to a live body, literally within minutes of it being removed, and must be frozen to preserve it during transport and storage, everything is much, much harder to get going. Both of these things mean a longer hospital stay and recovery and potentially a shorter life for the kidney. Live, preemptive (before starting dialysis) donations are ideal but do not happen nearly as often as is preferable. Cranappleberry fucked around with this message at 13:29 on Oct 2, 2023 |
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Oct 2, 2023 13:02
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One of the things I get to do now is get my blood drawn and mail it to a clinic myself. I don’t have to pay postage or nothing. Something neat about handing your blood envelope to the mail carrier.
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Oct 5, 2023 21:51
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You can get bees by mail too
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Oct 5, 2023 22:13
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I can't give you my kidney op but I hope this is in your future https://www.youtube.com/watch?v=D_5nLxZVoPo
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Oct 5, 2023 22:41
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This thread’s slowing down (just like my kidney functions)! Just an update, thank you a couple of posters who reached out via dms to volunteer to screen! Even if those posting pals wind up not being able to donate, it’s super awesome that they stepped up to get screened. Next week I meet with my nephrologist to find out if I’ll start dialysis or not! Wish me luck for my Monday appointment friends.
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Oct 10, 2023 03:39
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I hope you get a good kidney and it helps to restore you to a good functioning level. But after that, please don't stop, get a second kidney. And I'm not sure but two kidneys didn't work for you the first time, so keep working at it until you get at least a third. 
covidstomper58 fucked around with this message at 04:11 on Oct 10, 2023 |
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Oct 10, 2023 03:53
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I bet there's some billionaire out there with six kidneys, two livers, and an extra dick and rear end in a top hat.
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Oct 10, 2023 04:26
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There's something like 16 billion kidneys out there, it's not like we're running out of them. It's just making sure the kidneys go to those who need both of them that is the problem.
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Oct 10, 2023 04:30
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Turrurrurrurrrrrrr posted:I bet there's some billionaire out there with six kidneys, two livers, and an extra dick and rear end in a top hat. they're all extra assholes.
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Oct 10, 2023 05:12
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i had to throw all our unused kidneys in the trash compactor after work and pour bleach on them per company policy sorry op i gotta keep my job ya know
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Oct 24, 2023 14:17
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Sorry OP I only have one, you can't have it.
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Oct 24, 2023 15:23
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This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening. Please send good vibes my way.
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Feb 2, 2024 04:56
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N. Senada posted:This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening. Congoontulations
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Feb 2, 2024 04:58
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N. Senada posted:This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening. Which goon's kidney are you getting
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Feb 2, 2024 05:00
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Best wishes you have all my vibes 
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Feb 2, 2024 05:02
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Toxic Mental posted:Which goon's kidney are you getting Not mine, right? 
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Feb 2, 2024 05:03
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Kitty blessings, friend.
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Feb 2, 2024 05:06
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N. Senada posted:This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening. You've got this bud. I hope they got you a good one. Thank you donor <3
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Feb 2, 2024 05:10
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Toxic Mental posted:Which goon's kidney are you getting Whoever wakes up in the ice bath is the winner. I haven’t decided who yet.
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Feb 2, 2024 05:14
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hope the installation of a not-busted kidney goes as smoothly as possible 
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Feb 2, 2024 05:21
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N. Senada posted:This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening. yaaaaaaaaay!
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Feb 2, 2024 05:21
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When you get the VIN look it up on kidneyfax and make sure it got regular fluid changes.
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Feb 2, 2024 05:21
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N. Senada posted:This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening. All of the good vibes! I know you're stressed, and this is a very big thing, but this is good progress.
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Feb 2, 2024 05:59
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May you soon become healthy with plentiful organs, OP
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Feb 2, 2024 06:20
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N. Senada posted:This is an update. I’m potentially receiving a kidney tomorrow. This has relieved and stressed me in equal amounts. If all goes well I’ll be going under the knife and be one kidney bigger tomorrow evening.
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Feb 2, 2024 06:21
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lmk how it goes i've been looking at getting a third
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Feb 2, 2024 06:29
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Congratulations man 
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Feb 2, 2024 10:04
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