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The Big Jesus posted:You’re going to have your sadboi hours. This is definitely true no matter how good or bad the relationship ended. By the time I got divorced our relationship was toxic as could be but there's always still the investment you made in the relationship and how you wanted it to succeed. As ready as I was to be done with my ex I still cried when it was finalized. Find ways to cope as long as they're not harmful. I basically lived in the gym for a year while it was going on which was fine, then sank into a bottle after it was over which was less fine. Find a healthy way to cope, take your mind off things, do things that make you happy, don't be self destructive
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Feb 16, 2023 15:39
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I’m rooting for you, elk.
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Feb 16, 2023 15:46
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Addie took a cute photo. https://twitter.com/formerlyfiz/status/1626243655475294209?s=46&t=8_P6MOM3Ci4twRIfSb-t2g a sexual elk posted:2 kids, telling the 6 year old I have to go away for work and just hugging the crap out of the 2 year old cause he doesn’t understand anything Hey man if you wanna talk via Gmail it’s username. I’m in a different time zone but if you need to vent about anything I’m here.
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Feb 16, 2023 16:38
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Oh no I thought you and your ex were sharing her? Is she just with your ex now?
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Feb 16, 2023 16:41
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a sexual elk posted:Anyone here been thru a separation after a very long term relationship? Kinda lost right now, plus a few tall boys Man I'm sorry. That place isn't my place I just rent it often and became friends with the owner. Sorry I'm not rich enough for that place yet Intruder posted:Oh no I thought you and your ex were sharing her? Is she just with your ex now? holy poo poo I thought you were talking to Elk haha also 11 year relationship and broken engagement, still living with her looking for a place for her to move to, checking in. kiimo fucked around with this message at 17:04 on Feb 16, 2023 |
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Feb 16, 2023 17:02
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https://www.youtube.com/watch?v=-BLM1naCfME I guess it’s finally happening
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Feb 16, 2023 17:11
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bobjr posted:https://www.youtube.com/watch?v=-BLM1naCfME My friend did a comic about the history of Tetris if you want a fun read.
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Feb 16, 2023 17:22
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Nothing like having Tetris dreams.
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Feb 16, 2023 17:22
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That dude is doing his best Leo DiCaprio impression
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Feb 16, 2023 17:32
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I just started Persona 4. This soundtrack already slaps
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Feb 16, 2023 17:57
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bobjr posted:https://www.youtube.com/watch?v=-BLM1naCfME i am the man who arranges the blocks that descend upon me from up above they come down and I spin them around till they fit in the ground like hand and glove https://www.youtube.com/watch?v=hWTFG3J1CP8
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Feb 16, 2023 18:57
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Watched first episode of new season of Picard. Nothing to complain about, although not a lot happens in terms of setting up the season.
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Feb 16, 2023 20:18
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https://twitter.com/Variety/status/1626307899386654720
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Feb 16, 2023 21:11
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God, that terrible. Losing your mental faculties is one of my worst fears 
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Feb 16, 2023 21:24
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Frontotemporal is also like the worst type of dementia for the patient to suffer.
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Feb 16, 2023 21:28
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swickles posted:Frontotemporal is also like the worst type of dementia for the patient to suffer. Yeah there's no good type of dementia but there's definitely worse ones.
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Feb 16, 2023 21:31
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My mom's side of the family have degenerative neurological disorders so there's a non-zero chance I could have dementia too.
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Feb 16, 2023 22:02
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Android Apocalypse posted:My mom's side of the family have degenerative neurological disorders so there's a non-zero chance I could have dementia too. Same on my side. My dad's got slow decline so he's an even bigger rear end in a top hat now than he was 10 years ago. Still, just brutal watching people go through it. I feel bad for his family and kids - it's one of the hardest things to see
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Feb 16, 2023 22:10
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Can’t stop chuckling at this supremely dumb thing https://mobile.twitter.com/augerbug/status/1626169168520441856 Edit: poo poo way to read the room Rinaldo
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Feb 16, 2023 23:00
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swickles posted:Frontotemporal is also like the worst type of dementia for the patient to suffer. The first time I saw a case of this, I resolved to muster every bit of cognitive wherewithal I had remaining to put a bullet in my brain the day of my diagnosis. What a goddamned shame. 
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Feb 16, 2023 23:32
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What’s so bad about it? Like I get it’s all awful but what about that specific type makes it so much worse?
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Feb 16, 2023 23:33
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Boy howdy to I appreciate having a vehicle that's a tank in the snow
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Feb 16, 2023 23:50
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Rectal Placenta posted:Boy howdy to I appreciate having a vehicle that's a tank in the snow It owns OP
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Feb 16, 2023 23:52
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Joey Freshwater posted:What’s so bad about it? Like I get it’s all awful but what about that specific type makes it so much worse? With Alzheimer's and a lot of other types of dementia, the sufferer is rarely aware of it, and usually only at the onset of symptoms, early in the disease. Alzheimer's patients are mostly pleasant, just prone to confusion and may have bad reactions to that from time to time, but even those episodes are forgotten and they go about their day. Its slow and terrible, but its not really until the very end that the patient truly suffers. With frontotemporal the underlying knowledge of dementia is there, and the personality changes are permanent. Perfectly nice people become raging combative monsters, and then realize it for a bit, but ultimately know there is nothing they can do. This is on top of the aphasia which is one the most frustrating things in the world of medicine, and comes in two flavors: expressive and receptive. With receptive imagine your friends are having a conversation in a completely different language, except you took that class in high school. You know some of the words, but have no idea what they are saying no matter how slowly and clearly the pronounce it. That is bad but imagine the reverse (expressive). You are speaking perfect English, but the words coming out don't make any sense to your friends. They can also identify the words and know what they mean, but you aren't putting them in any order that they can understand. You keep saying "I love barbeque and beer" but they don't know why you just said "Pelicans biting California is fine for now, thanks."
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Feb 17, 2023 00:01
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Does that extend to writing as well? Like if instead of saying it, could they write it and have it make sense? Or is that affected too?
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Feb 17, 2023 00:05
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Bird in a Blender posted:Does that extend to writing as well? Like if instead of saying it, could they write it and have it make sense? Or is that affected too? In most cases yes it does, but oddly enough not in singing! In fact, that is one of the therapies for patients with permanent aphasia after a stroke. They are taught to sing/speak in an effort to retrain their pathways. edit: It also affects sign language too! swickles fucked around with this message at 00:11 on Feb 17, 2023 |
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Feb 17, 2023 00:09
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God our brains are stupid.
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Feb 17, 2023 00:16
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swickles posted:With Alzheimer's and a lot of other types of dementia, the sufferer is rarely aware of it, and usually only at the onset of symptoms, early in the disease. Alzheimer's patients are mostly pleasant, just prone to confusion and may have bad reactions to that from time to time, but even those episodes are forgotten and they go about their day. Its slow and terrible, but its not really until the very end that the patient truly suffers. With frontotemporal the underlying knowledge of dementia is there, and the personality changes are permanent. Perfectly nice people become raging combative monsters, and then realize it for a bit, but ultimately know there is nothing they can do. This is on top of the aphasia which is one the most frustrating things in the world of medicine, and comes in two flavors: expressive and receptive. With receptive imagine your friends are having a conversation in a completely different language, except you took that class in high school. You know some of the words, but have no idea what they are saying no matter how slowly and clearly the pronounce it. That is bad but imagine the reverse (expressive). You are speaking perfect English, but the words coming out don't make any sense to your friends. They can also identify the words and know what they mean, but you aren't putting them in any order that they can understand. You keep saying "I love barbeque and beer" but they don't know why you just said "Pelicans biting California is fine for now, thanks." Between reading about this, and having witnessed the state my mother was in during her final days, I can't believe we don't have assisted euthanasia as a routine option for those who want to avoid suffering in such ways. swickles posted:In most cases yes it does, but oddly enough not in singing! In fact, that is one of the therapies for patients with permanent aphasia after a stroke. They are taught to sing/speak in an effort to retrain their pathways. This makes me think of something I watched about Tony Bennett (maybe it was 60 minutes?) and how despite his dementia/Alzheimer's, he was suddenly in his element when he was on stage rehearsing and singing with Lady Gaga.
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Feb 17, 2023 00:39
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T-Square posted:Staring at that Sheepshead fish just reminds me of the other weekend when my girlfriend’s parents sat us and her brother and his girlfriend down to teach us how to play Sheepshead and my brain just did not understand any of it after two hours and I’ve never felt more dumb I’m stuck playing euchre because I don’t have enough Wisconsinites here and I’m too lazy to teach. Also, rooting for you, elk. I salvaged my marriage after a separation, but the climb out was exceptionally difficult. Feel free to pm me. Being able to talk to anyone, whether friend, therapist, or TFF posters, helps more than you would ever think.
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Feb 17, 2023 00:42
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TITTIEKISSER69 posted:Between reading about this, and having witnessed the state my mother was in during her final days, I can't believe we don't have assisted euthanasia as a routine option for those who want to avoid suffering in such ways. Because Jesus wants you and all of your loved ones to suffer and be in pain until your body finally gives up, apparently.
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Feb 17, 2023 00:43
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There’s gotta be euthanasia by the time we’re in our late 70s, right??
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Feb 17, 2023 00:49
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swickles posted:With Alzheimer's and a lot of other types of dementia, the sufferer is rarely aware of it, and usually only at the onset of symptoms, early in the disease. Alzheimer's patients are mostly pleasant, just prone to confusion and may have bad reactions to that from time to time, but even those episodes are forgotten and they go about their day. Its slow and terrible, but its not really until the very end that the patient truly suffers. With frontotemporal the underlying knowledge of dementia is there, and the personality changes are permanent. Perfectly nice people become raging combative monsters, and then realize it for a bit, but ultimately know there is nothing they can do. This is on top of the aphasia which is one the most frustrating things in the world of medicine, and comes in two flavors: expressive and receptive. With receptive imagine your friends are having a conversation in a completely different language, except you took that class in high school. You know some of the words, but have no idea what they are saying no matter how slowly and clearly the pronounce it. That is bad but imagine the reverse (expressive). You are speaking perfect English, but the words coming out don't make any sense to your friends. They can also identify the words and know what they mean, but you aren't putting them in any order that they can understand. You keep saying "I love barbeque and beer" but they don't know why you just said "Pelicans biting California is fine for now, thanks." Thanks for the explanation, gently caress me that sounds awful
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Feb 17, 2023 00:57
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Ornery and Hornery posted:There’s gotta be euthanasia by the time we’re in our late 70s, right??
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Feb 17, 2023 01:14
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Fifty Three posted:That depends on whether you mean in a good way or a bad way Logan’s Run anyone that that hits retirement age imo
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Feb 17, 2023 01:21
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gently caress for all we know that may be the actual Republican plan for cutting Medicare and Social Security spending
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Feb 17, 2023 01:22
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Ornery and Hornery posted:There’s gotta be euthanasia by the time we’re in our late 70s, right?? Lol, I'm living to 120 ez.
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Feb 17, 2023 01:32
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I experienced aphasia as a symptom of migraine once in high school and it was the most quietly terrifying half hour of my life. Writing answers down and thinking they made sense only to go back and see they were just ... random words. Ugh. Dementia scares me more than just about anything else. Fully intend to pull the ripcord on this mortal coil if I'm ever diagnosed.
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Feb 17, 2023 01:54
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Correct me if I’m wrong, swick, but isn’t frontotemporal often early onset and not immediately fraught with some of the more immediate life threatening challenges like swallowing difficulty? So the possibility of you being a lumbering, tiptoeing monster for like 30 years is much higher?
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Feb 17, 2023 02:17
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I've talked before about my mom's parkinsons. I have two missed calls on my phone today, in both cases my mom seems to have dialed me, and then immediately hung up before my phone even rang. I called back the second time, got her voicemail, and she replied asking why I'd called... even though I said in the voicemail I called because I'd missed her call. She's suffering for sure. There are times when she says she wants to die. There are times when she's very happy, though, she rocks like crazy and says she's "dancing" and has some sort of mild euphoria. There's times in between when she's happy to sit and talk, do a crossword puzzle(!), visit. I can mention something from a long time ago and she'll remember it and light up, it's a memory she can cling to; she also has no memory of having written a novel in the 1990s (it wasn't published but I helped her edit it) and when we mention something she has no memory of, she finds that disturbing. She lives day to day now, she doesn't hold on well to routine things that happened the day or two days earlier, although if it was a very unusual event she might. She knows that she's a different person but kind of doesn't know just how much she's changed. There are all these conversations we just don't even try to have any more. We're all glad right now that suicide isn't an option for her. In some ways I'm glad that none of us have to make some kind of decision about exactly when to draw a line, like we did for our sick cat. She is getting therapy and medication and it helps. She's a huge burden on her husband, who is being a hero but isn't really cut out to be a caretaker and is having to spend his own final years doing that instead of basically any of the things he wanted to do in retirement, and he doesn't even really get to do it with the woman he married. She is a human being and at times she is clearly 100% still having worthwhile quality of life, and even as those times become briefer or of less and less substance, nobody really has a right to take them away from her. And by the time she's too far gone to have any quality of life, she may also be too far gone to competently ask for it to end. What I am getting at is this stuff is hard hard hard, and there's no easy answer. "Just give me a bullet" sounds OK when you've seen patients advanced in their disease, but maybe not so good the day you're diagnosed, with some mild symptoms but maybe several years to do some of the things you always wanted to do, and people around you who would be devastated if you were gone. I try to reassure my family by saying something like this: look, we're in this together, we have nothing but hard decisions with no good choices left. We're going to make a lot of mistakes and feel regret over them and we're going to disagree a lot but we also have to just be forgiving of each other and of ourselves. Just accept that you are dealing with an unfolding tragedy that you cannot walk away from in good conscience so you're going to have to just participate in it, as best you can, and ask for the support you need as you go because you're going to need it. If you find yourself in this sort of situation for yourself or someone you love, that's my advice to you. Don't presuppose what you'll definitely do; just resolve to deal with your personal and family tragedy as best you can, and be forgiving of yourself and everyone else because this is just a hosed up situation nobody can ever actually be prepared for. Leperflesh fucked around with this message at 02:20 on Feb 17, 2023 |
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Feb 17, 2023 02:17
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LeeMajors posted:Correct me if I’m wrong, swick, but isn’t frontotemporal often early onset and not immediately fraught with some of the more immediate life threatening challenges like swallowing difficulty? So the possibility of you being a lumbering, tiptoeing monster for like 30 years is much higher? Generally FTD occurs earlier than Alzheimers. FTD just kinda means that his mri is now showing signs of progression. Although I sincerely doubt he wasn’t already showing radiographic evidence. Someone like him would have received a PET scan early on. Also he was probably able to compensate for quite a while, being an actor. People are very good at hiding things like that. You can have FTD (and usually do) without PPA. The fact his presenting symptom was trouble speaking as opposed to like behavioral disturbances is an ominous sign. swickles posted:In most cases yes it does, but oddly enough not in singing! In fact, that is one of the therapies for patients with permanent aphasia after a stroke. They are taught to sing/speak in an effort to retrain their pathways. Ability to curse out the CNA sitter trying to keep you in bed all night is retained as well! FizFashizzle fucked around with this message at 02:44 on Feb 17, 2023 |
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Feb 17, 2023 02:42
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