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chitoryu12 posted:Is there a good breakdown of the issues with Autism Speaks? I hear a lot about them being lovely for treating autism as a problem instead of a “different state of mind”, but I don’t necessarily disagree? I know autistic people who are able to function well, but also autistic people who run the gamut from “permanently 10 years old” to “unable to live without hospice care”. There are people who think that autism at any level at all is absolutely never a disorder; it's just being different. Far as I know something only counts as a "disorder" if it fucks up your life somehow so there are people who are autistic but don't have an autistic disorder as they function more or less normally. Some autistic people just need a bit of coaching on social skills or understanding people who aren't autistic but you also have others where it's completely crippling. From what I've seen a common criticism levied at them is that they're looking for a cure for autism while saying "well I'm autistic and neither want nor need to be cured so gently caress you." Except that like you said some people are so autistic they are literally incapable of caring for themselves. Those people would definitely benefit from some treatment that made them able to function. I don't know a lot about Autism Speaks but from what I've gathered they also kind of suck sometimes about some things? Just blathering about what I've seen personally which admittedly isn't much.
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Apr 7, 2019 03:41
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Mu Zeta posted:https://www.forbes.com/sites/emilywillingham/2013/11/13/why-autism-speaks-doesnt-speak-for-me/#7eaf6a793152 Thanks. I’ll look at it more closely.
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Apr 7, 2019 03:42
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basically the general community sentiment is to want having sensory processing issues to be treated as something like being deaf or being in a wheelchair in Autism Speaks' case, most of their messaging ends up being "autism sucks and everyone who has to live with autism or live with people with autism suffers daily, let's eliminate it however possible" which understandably comes across really tastelessly especially to people with autism (and I trust their opinions on this subject)
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Apr 7, 2019 03:46
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flatluigi posted:basically the general community sentiment is to want having sensory processing issues to be treated as something like being deaf or being in a wheelchair ...something that sucks and should be cured?
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Apr 7, 2019 05:58
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Byzantine posted:...something that sucks and should be cured? something that should be accommodated and not shat on again, the messaging that goes around is "I would've rather not had a child instead of one with autism" and if you think that's fine you should probably think twice
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Apr 7, 2019 06:19
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This reminds me of a UK play about how hard it is to raise an autistic child. The autistic child is played by a puppet, the only puppet in the play. The playwrights justification was that autistic people are like animal souls born into human bodies and that no one cares enough about the caretaker. I thought I could bring it up now without having any reaction but a part of me went back to where I didn't think I counted as a person as a kid because I was so broken. I didn't even think "I'm a bad person", it's "I'm a bad". The feelings are manageable and under control at least.
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Apr 7, 2019 07:07
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RandomPauI posted:The feelings are manageable and under control at least. Good on you. You're absolutely a people.
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Apr 7, 2019 07:20
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RandomPauI posted:This reminds me of a UK play about how hard it is to raise an autistic child. The autistic child is played by a puppet, the only puppet in the play. The playwrights justification was that autistic people are like animal souls born into human bodies and that no one cares enough about the caretaker. If Sally Hawkins can act as a mute then there's no reason you can't get a human-being to play an autistic kid instead of the creepy puppet from Lift-off. 
Inspector Gesicht has a new favorite as of 11:50 on Apr 7, 2019 |
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Apr 7, 2019 08:11
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RandomPauI posted:This reminds me of a UK play about how hard it is to raise an autistic child. The autistic child is played by a puppet, the only puppet in the play. The playwrights justification was that autistic people are like animal souls born into human bodies and that no one cares enough about the caretaker. Wow, that's hosed up even for the standards of decades (?) ago.
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Apr 7, 2019 10:32
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It was this year.
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Apr 7, 2019 10:53
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The important thing is that autistic people were told not to complain or bother the people who worked on the play because the people putting on the play were the real victims.
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Apr 7, 2019 10:56
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RandomPauI posted:This reminds me of a UK play about how hard it is to raise an autistic child. The autistic child is played by a puppet, the only puppet in the play. The playwrights justification was that autistic people are like animal souls born into human bodies and that no one cares enough about the caretaker. RandomPauI posted:The important thing is that autistic people were told not to complain or bother the people who worked on the play because the people putting on the play were the real victims. Yep, that sounds about right, in my experience. It's constant and incessant, this messaging that Autistic people do nothing but take. So many of the little informational books and other literature my well-intending parents had for me really reinforced that mindset, that I really would never be anything more than an unpleasant burden on them by virtue of being on the Autism spectrum. And it's definitely not unique, it's at the point where you get these anti-vaccination folks being more willing to risk their child's life than risk them being Autistic(???). It's become particularly bizarre, especially when I compare it to these weirdly fetishizing mindsets regarding Autism (the best example that comes to mind are Q-Anon adherents describing themselves as "Autistic" because they are relentless in their research). I apologize if I come off like I'm complaining or whining at all, I know I have a lot to be thankful for in my life, but it does suck at times.
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Apr 7, 2019 12:23
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Byzantine posted:...something that sucks and should be cured? Cure is a tidy little euphemism. The causes of Autism aren't totally pinned down, but it's not a simple chemical imbalance, it's structural. A theoretical "cure" for Autism wouldn't be a pill or a shot, it would be radical, personality-altering brain surgery that's well out of reach of current technology. Prenatal gene therapy is another theoretical avenue but that's fraught for its own reasons, which I hope are self-evident. Basically an autism cure 1) is science fiction. 2) is firmly in the horror/dystopia subgenre of sci-fi. 3) ignores the stated wishes of basically everybody who is actually Autistic. Just ask yourself "Do I want my brain functions edited for the convenience of others? Should people like me should be eugenically removed from the population?"
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Apr 7, 2019 12:58
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Tsubasa2004 posted:Cure is a tidy little euphemism. Prenatal Gene Therapy is the name of my cryptofascist industrial band.
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Apr 7, 2019 13:27
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Dammerung posted:I apologize if I come off like I'm complaining or whining at all hell no
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Apr 7, 2019 14:29
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Autism Speaks also puts heavy emphasis on "these poor parents burdened with their horribly broken subhuman child, won't someone think about how these kids ruined their parent's lives?" People act like that with down syndrome kids or kids born with physical disabilities, so instead of having a different kid they have a broken one and it's just so unfair! Yeah, we should provide services to help them, yes they can have a harder time getting through life, yes support systems and organizations are important, but we shouldn't be making them feel like being born was a mistake and they're not human enough because they're not "normal".
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Apr 7, 2019 14:54
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I know a single dad with a severely autistic son who requires 24/7 care and he's into Autism Speaks, sadly. He's had a rough time of it and he genuinely loves his son. I can imagine why he wishes for a cure, but I feel uncomfortable when he talks about donating to Autism Speaks, has a bumper sticker on his car etc etc.
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Apr 7, 2019 15:01
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Inspector Gesicht posted:If Sally Hawkins can act as a mute then there's no reason you can't get a human-being to play an autistic kid instead of the creepy puppet from Lift-off. That looks like a Waldorf Doll; a doll style created to fit with the Waldorf educational system and theoretically encourages children's cognitive development forcing them to use their imagination to "finish" the doll. They also make great dolls for your modern child to get made fun of for owning.
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Apr 7, 2019 15:19
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For the record, this is the puppet standing in for an autistic kid in the UK play. As always Sesame Street did a better job at this when they introduced a muppet kid called Julia who is on the spectrum. Since most of the cast are muppets she isn't singled out physically in a negative manner like the above example
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Apr 7, 2019 15:46
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Why didnt they just get Ben Afleck to do it?
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Apr 7, 2019 16:22
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Inspector Gesicht posted:For the record, this is the puppet standing in for an autistic kid in the UK play. That's not a huge improvement.
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Apr 7, 2019 16:41
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Isn't that the play where the husband shits on his wife's pillow and blames the kid, because it's just so hard to have an autistic kid and I guess they need an excuse to put him in a care home?
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Apr 7, 2019 16:42
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Ironically, one of the many suspected causes of autism, and one of the ones that has actual hard evidence behind it, is rubella. Thus, vaccines can probably prevent autism (in 1% of cases).
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Apr 7, 2019 16:49
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To gush further about Sesame Street's depiction of autism, when the Julia character appeared in a parade-float she was wearing noise-cancelling headphones. How is it that any one program that's been going so long remain so woke/aware? Inspector Gesicht has a new favorite as of 17:39 on Apr 7, 2019 |
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Apr 7, 2019 17:34
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Inspector Gesicht posted:To gush further about Sesame Street's depiction of autism, when the Julia character appeared in a parade-float she was wearing noise-cancelling headphones. Because they actually give two shits about kids as opposed to toy sales.
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Apr 7, 2019 17:45
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Inspector Gesicht posted:
Because they actually give a poo poo and talk to psychologists and educators during the writing process. They work to make sure what they're doing is still relevant and effective as an educational program. https://www.smithsonianmag.com/innovation/team-sesame-street-created-character-autism-180967218/
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Apr 7, 2019 17:47
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Sesame Street starts from a position of caring and understanding. They encourage kids to learn, but the people behind it have the same mindset of continuing education and understanding their audience.
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Apr 7, 2019 17:49
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Elmo is still terrible though.
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Apr 7, 2019 17:53
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The problem with this sort of discussion is that 'autistic' is used to describe a huge range of people, going from those who can live their lives with minimal accommodations at one end, all the way to people who are completely incapable of spoken language. Which ends up with a lot of cross-talk because the people in the discussion aren't necessarily referring to the same thing when they say 'autistic'.
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Apr 7, 2019 19:05
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Inspector Gesicht posted:Elmo is still terrible though. Nah he's delightful. ...in very small doses.
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Apr 7, 2019 23:03
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umalt posted:Autistic People loving hate Autism Speaks because of that mentality. In addition to how Autism Speaks believes that Autism is a disease to be cured, rather than merely a different way that the human brain thinks (that happens to have difficulty coping with modern society). yo I have a frisky dash of the 'tism and it's also ok to recognize we make people hate us because we're assholes usually unless we try harder. The reason our brain works differently is because it's broken. If you tell me it's ok to "act naturally" around people I will do things that are unpleasant to them that they have no reason to accept or tolerate.
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Apr 7, 2019 23:35
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mmmm, you're not helping.
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Apr 7, 2019 23:43
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Inspector Gesicht posted:To gush further about Sesame Street's depiction of autism, when the Julia character appeared in a parade-float she was wearing noise-cancelling headphones. At an American parade, this is just prudent to protect one’s ears from gunfire.
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Apr 7, 2019 23:46
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Pick posted:yo I have a frisky dash of the 'tism and it's also ok to recognize we make people hate us because we're assholes usually unless we try harder. The reason our brain works differently is because it's broken. If you tell me it's ok to "act naturally" around people I will do things that are unpleasant to them that they have no reason to accept or tolerate. Maybe it's not my place, but I don't think autistic people are broken. Their brains work differently, and they process things differently. It's all about finding the best method for them, for whatever they struggle with, which can be entirely different from person to person. It's a challenge, because you've got to break the mold and think outside of the box on a huge level, and get your own mind into an entirely different mold. That's how I understand it, at least. Autistic people aren't broken. They're people, and operate differently.
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Apr 8, 2019 00:04
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Trying not to pull this further off-topic but as another person with autism the way to market to me is making me feel I’m making my own decisions and being included, even if that inclusion is the capitalist dystopia that is social media accounts being supportive of each other and manufacturing free advertising by getting people riled up on the internet. I don’t have a broken brain, I have a different brain, so trying to sell me on, say, a monthly paid app that helps me stay focused with daily tasks or a TV show with lots of nerdy merch that features an autistic character means reflecting what I want to see and engage in, not my hand-wringing parents who want inspiration porn or some medical professional hawking supplements. There’s a CDC report from 2018 saying 1 in 59 kids are on the spectrum to some degree. That’s a lot of people and a lot of potential sales figures, as bleak as that sounds. Sesame Street’s Julia is featured in a few books, videos, and toys, but then again: thespaceinvader posted:Because they actually give two shits about kids as opposed to toy sales. If I were five again I’d be begging my mother for a Julia doll.
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Apr 8, 2019 00:10
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The autistic kids who are broken are the ones who would be classified with another more serious developmental disability twenty years ago. The vast majority of autistics get along just fine with a little extra accommodation. We probably need to differentiate the groups more. Then again this way probably creates more resources for kids who might not have otherwise received help.
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Apr 8, 2019 01:31
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SUPERMAN'S GAL PAL posted:If I were five again I’d be begging my mother for a Julia doll.
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Apr 8, 2019 11:57
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Pick posted:yo I have a frisky dash of the 'tism and it's also ok to recognize we make people hate us because we're assholes usually unless we try harder. The reason our brain works differently is because it's broken. If you tell me it's ok to "act naturally" around people I will do things that are unpleasant to them that they have no reason to accept or tolerate. Have you considered that your having the 'tism and being broken are not related to each other and that you would still be broken without the 'tism?
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Apr 8, 2019 12:06
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Pick, go gently caress yourself.
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Apr 8, 2019 12:27
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Inspector Gesicht posted:Elmo is still terrible though. IIRC the problem is that various Sesame Street characters are designed to appeal specifically to different stages of development, and Elmo in particular to the youngest, loudest and most profitable demographic. jobson groeth posted:Have you considered that your having the 'tism and being broken are not related to each other and that you would still be broken without the 'tism? The fun part of autism is that unless you are extremely lucky and have understanding parents who are willing and able to accommodate your needs and provide a healthy upbringing, you're very likely to suffer all kinds of bullshit in crucial stages of your development that leaves you various flavours of broken, even moreso than going through said bullshit without being autistic would do!
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Apr 8, 2019 12:50
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